Chronic Pain Support Group

Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...

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Brain & Nervous System
/ Chronic Pain Support Group

surgery didnt help/bummed

honor435
honor435
I had surgery in Oct for chronic pelvic/low bcak pain, they found endo, there was some on my ureter that the dr didnt feel "comfortable" removing, She said I need a "endo specialist" and a urologist. I thought she WAS an endo expert!So, now I find another dr and have surgery, again. If I dont do it it could block me from peeing and I could damage my kidney. Im down to 3 days at work, and so tired.Need someone to talk to. Thanks.
deleted_user
deleted_user
I don't know what else to say, except that I'm sorry this is happening. That must be so discouraging - to have to deal with surgery again.

How close are you to getting a referral to a someone who knows about endometriosis? Can this doctor's office help you with that? They must have contacts. How about calling your insurance? I'm concerned for you, hon. The more cycles you go through without intervention - the more this is going to grow.

Take care of yourself.
::big hugs::
deleted_user
deleted_user
Sorry your surgery wasnt a sucess.
If that was me I dont think I would let anyone touch me unless I was sure of their abilities next time around.
deleted_user
deleted_user
So sorry you have to go through another painful surgery to get relief. If you are home on Wed. we have chats 9am PST.

Ouch
deleted_user
deleted_user
My niece just had her third surgery for endometriosis. This time they removed lesions from the uterus, the bowel, bladder and had to completely remove her spleen. I hurt so much for her. YOu must look to the specialist to get the help you need. My poor niece is only 31 and does not want a hysterectomy but she's down to 98 pounds and severe pain. We're all hoping that this surgery helps her. She has a high profile career and she does not want to give that up. She was down to not being able to have a pee or BM without lots of time and pain. Please go and find that specialist. Get those lesions removed.
deleted_user
deleted_user
I see you are 44? You might consider a hysterectomy as I did that and it was the best decision I ever made! Of course it was painful (mostly the first 24 hours) but so is every surgery. Not having ANY pain, no periods and no more endometriosis, fibroids and ovarian cysts made me free. I used the lowest dose hormone patches for just two years and then went cold turkey. I had my surgery at age 40. I am no over menopause, periods and all that mess at a fairly young age and would do it all over in a heartbeat....
deleted_user
deleted_user
I agree, if you're not going to have more children, the hysterectomy is a viable solution and you would be done with that type of surgery once and for all. I had mine at 48 and it was one of the best decisions I ever made.

So sorry you are in so much pain and dealing with the peeing and bowell movements sounds just awful! Good luck to you sweetie!
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