Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
OK here is my rant for the day, I am fed up with doctors, the healthcare system, drugs and pain, most of all the pain. I awoke today and the first thought in my mind was how beautiful it looked outside and that this was going to be a wonderful day. Please excuse my language but I might as well have kept my ass in bed....
I stood up and immediately fell down, it seems the swelling in my legs has come with a wicked vengeance. In my haste to make it to floor level i dislocated my right elbow and shoulder, the elbow went right back in but the shoulder was out for a good 4 hours when the swelling went down. on top of all of this fun my legs hurt so bad, i am used to the joint pain but this... this is different, the pain i now feel in my legs feels like it goes all the way down to the cellular level, any pressure i put on them is excruciating.
I had school conferences for 2 of my children today and it took almost everything i had to make it through them, and then i was off to the doctors to discuss lab work and my legs. it took an hour for the dr to see me and since my hormone levels are off i tend to pass out occasionally and that what i did, passed out in a very uncomfortable position so now i have that pain to deal with as well. Now my doctor arrives and basically rushes through my appt and refers me out to several other doctors. now at the time this seemed strange to me because he is usually very concerned about me and offers to increase my meds if the pain is too much, but instead he says he cant do anything else for me and sends me on my way.
Well i end up talking to one of the nurses at his practice that we know after i make it home and it turns out that my doctor is being sued by one of his former employees and he is now dumping all cp patients out of his practice for some reason.
so here i am, once again suffering and the doctor he is sending me to is one of those doctors that is notorious for putting patients through horrible ordeals to just try something different. I have been doing this too long to be an experiment again, i am soooo upset and sore and generally hurt by this.
ok im officially pissed off at life now, thank you all for listening i shall now proceed with banging my head against the wall.........Kris......
I stood up and immediately fell down, it seems the swelling in my legs has come with a wicked vengeance. In my haste to make it to floor level i dislocated my right elbow and shoulder, the elbow went right back in but the shoulder was out for a good 4 hours when the swelling went down. on top of all of this fun my legs hurt so bad, i am used to the joint pain but this... this is different, the pain i now feel in my legs feels like it goes all the way down to the cellular level, any pressure i put on them is excruciating.
I had school conferences for 2 of my children today and it took almost everything i had to make it through them, and then i was off to the doctors to discuss lab work and my legs. it took an hour for the dr to see me and since my hormone levels are off i tend to pass out occasionally and that what i did, passed out in a very uncomfortable position so now i have that pain to deal with as well. Now my doctor arrives and basically rushes through my appt and refers me out to several other doctors. now at the time this seemed strange to me because he is usually very concerned about me and offers to increase my meds if the pain is too much, but instead he says he cant do anything else for me and sends me on my way.
Well i end up talking to one of the nurses at his practice that we know after i make it home and it turns out that my doctor is being sued by one of his former employees and he is now dumping all cp patients out of his practice for some reason.
so here i am, once again suffering and the doctor he is sending me to is one of those doctors that is notorious for putting patients through horrible ordeals to just try something different. I have been doing this too long to be an experiment again, i am soooo upset and sore and generally hurt by this.
ok im officially pissed off at life now, thank you all for listening i shall now proceed with banging my head against the wall.........Kris......
Your day was a nightmare, I am so sorry! And I am as frustrated as you are with your doctor situation. Maybe we need to form a club. Because I am usually pretty easy going, but right now I am pissed off too! Hugs, Cathy
hope things get better soon hugs minnie
Hold on, it will get better.
Blessings to you n yours', Vicky xxxxxxx
Healing hugs
I would keep on going back to him and wait till he says something and then go from there, I dont see a doctor loosing money buy getting rid of patients when he is being sued.
Unless the employee said he was just giving out pain meds to people who dont need them and you do so he may be getting rid of those people but you are legit, but if he is doing that and he is guilty for that I would be leaving on my own because of that dont want some drug pushing doctor.
On the other side there are investigations and him dumping people will look so bad so I am sure he is not dumb and do that.
I am so sorry. Some days it just doesn't pay to get out of bed! I hope that today is better for you.
I congratulate you on getting to the kids' teacher conferences. It sounds like you have your priorities in correct order.
I wish I had answers. It does sound like you have Ehlers Danlos Syndrome. Do you? I went on a journey of almost thirty years to figure out what in the world was wrong with me and this was confirmed by a geneticist a few years ago. They told me at that time that they are seeing more and more patients who also have the pain with EDS.
In the meantime of seeking answers, it became apparent that I have OA and RA. My knees have both been replace and I have DDD of the lumbar spine.and do quarterly ESI"s. I usually have the RFA about once a year. I have lortab for breakthru pain but use very little while the steroid is working.
I am glad that you feel safe to vent here. I am with manny, something seems screwed up with this doc. Perhaps a new team would be one of the best things that could happen. Keep an open mind but I do understand your frustration.
Take care of yourself first and rest, do PT, ice, heat==any copng mechanisms you can think of. Protect your joints at all cost. Keep your weight down.
I wish you and your family all the best,
Melinda
Please look up "Lymphedema" I dont understand the reason why they wouldnt take this more seriously. Especially because both of your legs are affected-- a diff between edema and Lymphedema.
that just seems ridiculous. You have a say in how you should be treated. Some Dr are letting the system take over how they care for patients. It's not right.
I hope you find one that makes you feel comfortable and you click with
wishing you luck