I dont personally have it, but a freind of mine had it so bad, they placed a metal rod in her back when she was about 14, she is 39 now. She doesnt have much probelms now.

i have scoliosis and didn't wear a brace as a child, but i was pretty active which helped some. i was seeing a chiropractor regularly as an adult before RSD. i now have arthritis in my neck and hips and stress my left side since RSD is on the right which aggravates it. i haven't discussed surgical options b/c of the RSD.
if you're able to exercise, i found that helped a lot b/c it strengthen the muscles that support the spine.
wish you the best.

good morning,yes i do heve scolois.my spine was curved to make the prfect letter s.i had emergency surgery.i have a herrington rod.maddie.

I do, with a dropped shoulder blade. Was checked periodically thru childhood but no bracing. Options then were more limited. As for how it impacts me now, it's more that the curve creates uneven tension on the muscles running parallel the spine so I'm prone to pulled muscles in that thoracic region - a sneeze or bad coughing is enough - but it hasn't been ruled a major factor in the other issues with my cervical or lumbar spine.

I have the "C" scoliosis along with kypho scoliosis and rotoscoliosis..
in short, my spine is a curled/curved up mess. I didn't have all these dx's until the last few years, the roto was just "noticed" this year.
Surgery of any kind was never an option because of the severe degeneration of the disks (DDD) , for me, the surgical risk was greater than not having it.
I was able to get epidural steroid inj. up until early this year that did give me major relief, one time it was for almost 2 yrs. This last round was the end of them though, the disks have collapsed toothe extent that needle will no longer "fit" in.
There's one tiny spot in my sacral area still open that we are going to try them in to see if it will remotely help the lumbar portion.
My right hip is elevated to the degree a brace can't stay in proper position, one shoulder is more prominent/higher than the other causing
bra problems and my "dowager's hump" is becoming more noticeable each year:(
I have OA in there along with most of my joints, most recently, my knuckles.
I'm luckier than most though, the CP didn't really manifest much until after my 60's had begun....at least I had a good long life before things
went this far "south".

Hope today is a low pain day for everyone....

I suspect there may be quite a few CP'ers that have scoliosis. It makes sense if the spine is curved, it might cause other problems there.

Noodle, one of my shoulders sits higher than the other, too. I remember taking muscles relaxants for my back as early as in my late 20's.

jjcaddell....if it wasn't for my spine I'd be in great shape;)

As I said, I'm a lucky one, until it literally started turning for the worse, I managed fine on anti-inflammatories and muscle relaxants.

I had the original scoliosis dx back in my 40's but it was very minor and I was told it would be years b4 it would be a problem and that's just the way it worked out.
The rotoscoliosis was just recently "noticed", apparently it progresses fairly slowly as compared to the other two but it had never been mentioned in the past but it must have already been there, it didn't just suddenly materialize in 5 mos.

I do wonder how many cp'ers do have it and been mis-dx'd:(

I have scoliosis. It's probably not progressing and isn't severe, but it apparently has had a very bad effect on my lower back. Treat it aggressively and non-surgically, if possible. My hunch is that anyone with back pain whose maximum adult height is shorter than expected (based on childhood height or compared to relatives) probably has scoliosis. Also, I suspect that even in young people, it's often caused by weak bones, ligaments, and/or muscles.

I have scoliosis. It's probably not progressing and isn't severe, but it apparently has had a very bad effect on my lower back. Treat it aggressively and non-surgically, if possible. My hunch is that anyone with back pain whose maximum adult height is shorter than expected (based on childhood height or compared to relatives) probably has scoliosis. Also, I suspect that even in young people, it's often caused by weak bones, ligaments, and/or muscles.

I have scoliosis. It's probably not progressing and isn't severe, but it apparently has had a very bad effect on my lower back. Treat it aggressively and non-surgically, if possible. My hunch is that anyone with back pain whose maximum adult height is shorter than expected (based on childhood height or compared to relatives) probably has scoliosis. Also, I suspect that even in young people, it's often caused by weak bones, ligaments, and/or muscles.

I have scoliosis. It's probably not progressing and isn't severe, but it apparently has had a very bad effect on my lower back. Treat it aggressively and non-surgically, if possible. My hunch is that anyone with back pain whose maximum adult height is shorter than expected (based on childhood height or compared to relatives) probably has scoliosis. Also, I suspect that even in young people, it's often caused by weak bones, ligaments, and/or muscles.

I have scoliosis. It's probably not progressing and isn't severe, but it apparently has had a very bad effect on my lower back. Treat it aggressively and non-surgically, if possible. My hunch is that anyone with back pain whose maximum adult height is shorter than expected (based on childhood height or compared to relatives) probably has scoliosis. Also, I suspect that even in young people, it's often caused by weak bones, ligaments, and/or muscles.

MINE was severe so much as 2 cause losing 3 of my babies,and being told if i didnt have the surgery,i would b in a wheelchair by age 25.had the emergency surgery,now still have the herrington rod.my whole body is so lopsided from shoulders through out my body.maddie.