Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
.....everything gets thrown in that bucket until it becomes acute. My PCP has been doing this to me since I started seeing her 2 or 3 years ago.
I've been telling her that my upper back (not spine) and shoulder have been killing me for the last year. I've hobbled into her office every 4 weeks for a check and my scripts only to have any specific issues brushed aside. I tell her I can't live like this...she increases my antidepressant. I tell her the pain is unbearable...she tries another small dose of something different.
I've said over and over that I think we're missing something and the last time, she got a bit snippy and said she couldn't imagine what!!! Therein lies the problem...no imagination!
Finally she agreed to send me to an Ortho for my shoulder, I waited over 3 months for the appt., he sent me for an MRI, he never sent me a report and after weeks of trying to get a follow up...tomorrow's the day.
I took it upon myself to get copies of everything from the local hospital and found the MRI report in the big stack of papers. Man...am I pissed.
It turns out that my horrible pain can be explained quite easily. I have a full thickness tear of hte blah blah near the humeral attachment and another tear of something else. And I'd been working as a hairdresser, close to tears from pain, and was told it was Fibro!!!
The neck pain can also be explained by Cervical Neuropathy. The pain from that goes down to my hands and some days I can barely turn my head. It took an ER doc to actually give it a name. He wants me to see a Neurosurgeon, but I haven't been able to catch my PCP in the clinic to even get a damned referral.
I won't say I don't have Fibro...I have all the tender points and oher symptoms, but that was diagnosed years ago. My fingers are starting to look pretty bad from arthritis, if I walk around or stand for more than a few minutes, my lower back will hurt so badly that my legs shake.
So beware, friends, if you're diagnosed with Fibro when you're young, your doc might not listen to anything you say in the future.
I guess you have to YELL!!!
Hugs,
Cherry (in some wicked pain today)
I've been telling her that my upper back (not spine) and shoulder have been killing me for the last year. I've hobbled into her office every 4 weeks for a check and my scripts only to have any specific issues brushed aside. I tell her I can't live like this...she increases my antidepressant. I tell her the pain is unbearable...she tries another small dose of something different.
I've said over and over that I think we're missing something and the last time, she got a bit snippy and said she couldn't imagine what!!! Therein lies the problem...no imagination!
Finally she agreed to send me to an Ortho for my shoulder, I waited over 3 months for the appt., he sent me for an MRI, he never sent me a report and after weeks of trying to get a follow up...tomorrow's the day.
I took it upon myself to get copies of everything from the local hospital and found the MRI report in the big stack of papers. Man...am I pissed.
It turns out that my horrible pain can be explained quite easily. I have a full thickness tear of hte blah blah near the humeral attachment and another tear of something else. And I'd been working as a hairdresser, close to tears from pain, and was told it was Fibro!!!
The neck pain can also be explained by Cervical Neuropathy. The pain from that goes down to my hands and some days I can barely turn my head. It took an ER doc to actually give it a name. He wants me to see a Neurosurgeon, but I haven't been able to catch my PCP in the clinic to even get a damned referral.
I won't say I don't have Fibro...I have all the tender points and oher symptoms, but that was diagnosed years ago. My fingers are starting to look pretty bad from arthritis, if I walk around or stand for more than a few minutes, my lower back will hurt so badly that my legs shake.
So beware, friends, if you're diagnosed with Fibro when you're young, your doc might not listen to anything you say in the future.
I guess you have to YELL!!!
Hugs,
Cherry (in some wicked pain today)
I'm sorry for all your going through. Hopefully you'll get some answers soon and some relief!
Hugs, Emily
Don't get me wrong i belive fibro is very real, i just think its dx'ed too much and the docs don't rule out everything or keep checking for diseases that mimic fibro.
keep pushing for answers, i had to be very agressive to get my dx.
hugs to you and i hope this gets sorted out
As dr just dont want to try to find out... To if u complain of pain and depression together its atomically fibromyalgia.
They dont think pain starts then you get depresed.
They think Depression hits then you get the pain and thats were tendions get tight as stress and depressed then becomes trigger points come along... Alot drs still think Fibro is mentel disorder like bipolar and ect.....
Shy
I got myself out of there!
My dx was delayed by 10 years!
The D*m doc still puts fibro on the check out sheet when I see him.
Yep! I am still angry that I am left with problems because not everything shows on blood tests and x-rays --
or maybe it would be better to say that not every doctor gives a crap about what is really wrong.
This morning at church, we learned about a guy who died from bone cancer. It took docs 9 months to diagnose the reason for his pain. So they don't know as much as they think they do about the human body!
I am glad that you found something. Hope you find some relief and no perm damage from this delay.
My hips down to my feet will throb terribly some days, my left knee and my wrists are extremely painful now...Fibro?
All I know for sure is that this pain is robbing me of my business and therefor, my income. And I stay isolated in my house all the time.
It is no way to live and I can see why some people choose not to.
Thanks everyone,
Cherry
For us we find validation and it always helps when we know why and where when we look at our pain. You may have to push more and be aggressive there is nothing wrong with that.
I was told that may have been my problem also in the beginning.
I'm so very sorry Cherry & I can say I know how you feel as it took me a long time for anyone to take me serious. I would think it would be a little hard for your PCP to look you in the eye, or it should be.
Its wrong to brush off a patients complaints over & over. I wonder at times who some of these doctors work for, its sure not us.
Sammy
i have fibro as well the pain your feeling i dont think is fibro . due to your profession i would think that would be hard on your upper torsal.
you may have fibro as well . my heart gose out to you also if she well test you for moysities . that pain can be in your upper back . hugs minnie blessing hope they get that pain under controll hugs minnie opps said that already
I hope that you contact me...I'm here for you.