Chronic Pain Support Group

Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...

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Enigma609 06/29/2011

I'm not depressed because my pets and my flowers give me joy, but I know I've checked out and I must have a death wish permanently embedded.

Does anyone else have/had this? On top of all the pain, I've had a myrid of other symptoms popping up and I don't even care to see the doctor about it anymore. My legs ache and my feet are swelling by the end of the day and I have dizzy spells on and off and I have diahrea. My head has been hurting for 30 years and getting worse and the pills don't work anymore it is so rare for me to feel well. My hands and body now shakes and I try to hide it from my family and friends. I hardly eat anything as it all makes me sick and my weight rises and drops 8 lbs per week but it is mostly water.

I've had so many blood tests and it keeps coming up nothing. Specialists are non existant around here. Earlier this year I was so desperate that I put myself on this stupid experimental trial wherby they would put a nickle piece in my heart to stop the migraines. I failed the test before it started. I've been to couselling and all manner of natural and physical medicine. Hope is fading.

I've stopped taking medicine as much. It's not working anyways. I don't put my heart in my job like I used to and people notice more how much I hurt. I'm not as nice a person as I used to be. I care less.

I work to keep everyone going. No one supports me and I am exhausted. Inside I have given up. I don't want anyone to know how sick I really am because I just want to fall off the face of the earth. Not suicidal like jumping off the bridge, but just die in my sleep or have a major stroke that kills me on the spot. I've had enough.

I love my family and the world around me, but I'm broken and no one knows why or how to fix it. So throw me away already. I'm coming up to 50 and I'm so tired of being sick all the time and it's getting worse.

Thanks for listening. I can't tell those around me as they need me and love me. I'm not good at being the burden.

deleted_user 06/29/2011

I am sorry for all your pain, CP is no fun and it can be frustrating beyond belief especially if you do not have a exact DX. I know why you want to give up and it is hard but I suggest that no matter how hard it is that you keep on fighting because if you dont fight know body is going to do it and I believe finding the right doctor is key and sometimes you have to look outside your area to find the right one.

deleted_user 06/29/2011

You have my heart, and my ears. I could have written that post myself. Please know that you are not alone. There are so many of us, who struggle to get up and bother going about their day, knowing what lies ahead - more fricking pain. It is non-stop and it is the worst kind of pain. There is no relief in sight, and no one quite gets it, except for those of us here at DS that have intracable pain as well. I wish I had something smart or significant to tell you, but I don't. I hope that you get the right doctor and the care that you need. You deserve to be happy and enjoy life. We all do.

Pinky

1Patriciann 06/30/2011

I have been completely disabled with CFIDS for the past fourteen years but after the death of my husband nine years ago left me to cope with all of this alone I now also have bouts of severe depression that can simply kick me down and stomp on me without mercy.

Pain and stress for long periods of time without resolution will wear us down and depression can be 'situational' and caused by our illnesses along with everything that is causing stress.

Be very, very gentle with yourself and know you are NOT ALONE and by reaching out for this support you can walk through this one step at a time. The DS Depression Support group is a very good place to share when depressed and coping with too much.

You and NOT ALONE and I care for I too suffer from coping with too much that creates severe depression at times.

((hugs)) Patricia

cherrychanga 06/30/2011

You will hear, overand over, that we understand. It's because we really do. I find this to be the only place where I can really, honestly express my despair and know that others are familiar with these feelings.

I'm in a difficult and painful place in my life. Let's try to find joy where we can and fight the battle a day (or an hour) at a time.

Many healing hugs,
Cherry

J0KEYJ 06/30/2011

biggest hugs ever..one thing people on here rly understand..I am ok on some days but others ..I wish I could press a remote on the world and just let me have no demands/no tireness/no pain/no worries..I must admit I got to a point of working to much..Id get on here from my friends stop it..Id say dont worry Im fine..I was doing this work to stop me thinking of this conditon..but of cause I was putting my body through more stress..but I didnt know how else to cope..I kept pushing and pushing stupid..what I do now is try and keep a balance I try and take care of me..little things..I have myself a plan a decluttering plan..I need my drug but I put in a tonic a natural one to help with things like iron levels..etc..I dont talk to normals as called some dont understand and add stress..I come on here..I try and rest and Ive had enough of the guilt trips..

Enigma609 06/30/2011

I read your posts over and over, gaining comfort each time.

I'm so glad I finally found someone who truly understand the depths of this monster. I find I have to pretent something else for "Normals" as JockeyJ so elequently called them, but for you guys I can finally release the emotional pain and you don't try to fix me or make me make it go away so you can feel comfortable.

My gratitude is enourmous. You have no idea. (or maybe you do)

kate333 06/30/2011

so sorry to hear your in so much pain...but keep going lovvie =)

I know its hard and I know you hurt...but Im sure so many people love and care about you, and in my eyes, putting a smile on someone elses face is worth a lifetime of pain.

Try and do things you enjoy...be a selfish for a while and make yourself number one priority.
Dont give up- your not alone...I know many others here feel the same way you do, I can also relate...but we're all here for each other on those bad days and we'll help you pull through.

Take care, keep your chin up
hugs xx

deleted_user 06/30/2011

You think you are a burden but you're not. I have felt the same way as you have many a time, but we have to wait for the Lord to bring us home in His own time and be grateful for every day. It is so hard to hurt everyday and to not know what is really going on with you. I have trouble with swelling too and I have had many tests done and they don't know what's wrong with me. I take meds for it, but somedays they don't even help and I will be so swollen that if you push on my legs, they will squish and leave an indent for quite a while. Why are you trying to hide all of your pain from everyone. Let them be a support to you because you obviously need someone to talk to. You need love and support from your family and friends. I will keep you in my prayers and please feel free to write me anytime. I would love to help you through this tough time. Take care of yourself and God bless you!
Chapin

sammyo1 07/01/2011

I'll add "I understand" to the others. Its a hard road to walk & not knowing magnifies it all.
There are days I just let loose & sob. I think it gets to us all at some point. The thing is we are all needed & we all deserve support. Trust me I have to remind myself of these very words.
I truly hope you find the cause & some laughter to lighten your heart a long the way.
How very sweet of you Chap, I think you'd be a big help to anyone looking for support.
God bless,Sammy

deleted_user 07/01/2011

I think even tho you say you are not depressed there is such a thing called situational depression. It sounds like certain things trigger a depression and some things bring you joy and that is normal to a extent as alot of people feel this way.

Have you thought about counseling to help you in the areas that you are having a hard time with it seems with alittle work you can be happier all around not just with your pets and flowers. For me like you I am sure the hard things and the non fun things ex: Work can get overwhelming and therefor causes me to break down.

deleted_user 07/01/2011

sweetie we have all been weher your at and somtimes go back . have you tryed accupuncture my sister has headach none could find reason or why its the only thing that works .a doctor is who told me about this he said his wife had headachs for years they found nothing . he sent her to accupunture and ot worked it also worked for my sister .
maby chinneese medcial doctores can help you . hugs minnie my heart gose out to you

Enigma609 07/01/2011

The variety and the content of the replies you have all given me is so incredibly valuable. I felt like such a failure and whiner for originally posting this, but I am now so glad that I did. You have uplifted me and I see now how stuck down I was. I am depressed and in denial and I need to deal with it properly. I have been unkind to myself.

You guys are so amazingly compassionate. what a gift I have been given. Thank you all for your replies

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