Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
I am 20 and new to all this. I have been been super sick for a major part of my life and I just recentaly found a doctor who didn't just blow me off and act like I was being a hypochondriac. I am new to all this and I am so overwhelmed and not sure what to do. I can't seem to find much of any relief. I have been through a fair share of treatments that haven't seemed to help much at all. I have been feeling like no one understands what I am going through. I don't seem to have any support. I'm finally finding doctors who are willing to go the extra step and test for stuff that most of them think are not needed and wont show anything. Obviously there is something wrong. There has to be a reason for me to be in all this pain. I am so stressed out and need relief. Doing my daily living activities seem like a chore.
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Hugs and hope the medical team gets to root of problems .
What you need is a doctor who will look outside the box. It's like Lupus. They won't test me for that because supposedly I'm too young. You need to be checked for all of the usual suspects like Fibro, MS, Thoracic Outlet Syndrome, or any disorder that would cause you wide spread pain. You could also be suffering from Chronic Fatigue Syndrome. It could even be something as simple as Major Depression Disorder that can cause you physical pain.
I have a similar situation where my oxygen saturation levels are completely normal in the docs office. They are usually between 94 and 98. But when I exert myself I get lung pain and dizziness. They would have to do what is called VQ scan of my lungs to test for lung damage. In my case I've suffered recent trauma in the lungs which is a strong indication that my symptoms are being caused by the after-effects of the initial medical event. With my leg I suspect that I have what is called Post Thrombotic Syndrome. They are going to run a Duplex Doppler Ultrasound on me to document the damage to my right leg.
Any how, I'm sorry for going into my own story. I wanted to give you an idea of how they don't think that young people can get sick. I was going to ask you if you've been tested for Lupus or Lyme Disease? In think you can get at least one of those diseases from a deer tick bite. Have you ever noticed a big welt anywhere on your body before? That would be one thing the doctors should eliminate in the diagnosis process. Also, you're not crazy or anything. Have you ever seen the show "mystery diagnosis?" Please look up that show and watch some of the episodes. There are people on that show who went years laying in bed and all messed, even called crazy by their doctors. But once they found the right physician; a doctor who was willing to look outside the box, they were properly diagnosed. One lady had a hole in her heart or something, could barely function, her own husband divorced her thinking she was making it all up! But once she found the right doctor, he did a echocardiogram and found the problem. Now she can function normally because they gave her the right combination of meds to alleviate her symptoms.
Don't be afraid to seek out answers. You are in control of your own body. You are your best advocate. Sometimes I wish I could make the doctors live in my body for a couple of days...and see if they think I'm crazy after that. Too bad we can't facilitate that! Any how, you will find out what is wrong with you and things will get better! I'm sending you some positive energy and support. I believe you, you know what is going on with you, and that is all that matters!
Hugs & God Bless
Lisa
Just wanted to welcome you to the group and let you know that you're not alone. We're all here fighting one pain or another, or many in some cases. Tigg is right, keep a journal. Write everything down. If one dr. turns you away, find another, you're never too young unfortunately. That's an excuse some drs. use when they can't figure things out.
You hang in there and keep us posted. Again, Welcome to the group.
Hugs,
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Mary Ellen
Glad to hear you may have found the right dr finally...so hang in there and hopefully soon youboth will start getting some answers/solutions to your pain
the docs have to do alot of testing as you know to find the cause and it is just as fustrating having test and waiting for answers just to have more test..
there are things you yourself need to do. any chronic illness and chronic pain takes a whole body approach in care mind body and soul..
do you like water? I fso ask for auqa therepy it is a great way to some type of exercise in and a lot less pain from it since you are weightless..if you are having sleep issues those need to be addressed your body doesntr heal enless you are hitting the right rehlm sleep..diet can also help certain food can actually cause more issues pain wise and digestions...some foods actually help with fatuige , pain , inflomation and such..and it seems to be a thing that people are having issues with wheat I dont know why that is but you see it more and more..so trying diffrent things for periods of time to see if they have any effect.. taking control of your own health is hard..I have struggled with chronic pain nerve damage and fibro myalgia plus a few other issues for mor then 13 yrs, you will have good days you will have very bad but you wil make it and look back and a year has passed then two and so on..,prayers
Best wishes.