It is very unnerving to have a doctor tell you they have no idea what's wrong... pity she didn't get serious before now about sending you to someone who may be able to help you... but hopefully the pain clinic will come up with a med combo that will give you some decent relief and the Rheumy will have some idea of what's up, seeing your gp doesn't. Sending gentle comforting hugs for you Cherry.
Take care... Gaye... xxx

i'm so glad she was able to admit this and look for more help. it's a big fight between the fibro and RSD dx for some reason. they haven't researched RSD enough although it's been documented for 150 years. i've gone through that and it depends MD to MD and we have to pay for it. the insurance companies will make it hard unless you have an MD who knows how to get through their stupid hoops. i hope you can find one and get stronger meds. you have to fight as hard as it is and you will get through this. power hugs, cherry, peaceful night.

You sound a lot like me before I received the dx of Celiac. Have you been tested for that?
Sorry if you said before. I can't remember.

Well at least now you can look for the right answer. Better than sitting still with the wrong info.

When was the last time they did complete blood workups on you? Might be something to talk to the Rheum about.

Good luck. Hopefully some new eyes will see what is going on.

That's crazy with the meds, Im having the same prob with one of mine.

also, how can your ortho say no torn cuff, if he never did an mri.
frustrating.

hang in there, you'll get answers soon
hugs sandi

Your doctor needs to call in the authorization my insurance does it all the time and it does not mean they will cover it and if they do it may be for a limited time, I dont want to be the bearer of bad news but this has happened to me alot and it is a hassle.

I am glad that your doctor is doing something for you and I hope they find the DX to get you on the road to recovery.

I did have an MRI of the shoulder and the radiologist reported a full thickness tear and another small one, but the ortho said he thinks it's tendonitis and showed me the 2 pockets of fluid and a very tight tendon.

This has my PCP confused and she said she spoke to another doc in her clinic about it. They don't understand why the ortho is saying this, either. All I know for sure is...it hurts! I sure wish they'd get on the same page!


I'm really hurting this morning and wishing I had the new med to try. I'm a little worried about having booked 3 clients today, but I WILL get through it.

I wish it didn't take so long to get anything done.

Hugs,
Cherry

Forgot to mention...I asked the doc to do another complete round of bloodwork and she did so we'll see what that shows.

Cherry, I've had RSD for over 12yrs now & it is very painful and spreads. Usually starts from a minor injury or surgery in an extremity like a hand or foot but can start in a shoulder, etc too.
Back in 99 I was blessed to have found a great pain doc who was the 2nd to dx me; 1st was my Ortho doc.
There are bone density test, thermography tests, & I would be more than happy to discuss it with you if you would like to as I feel that everyone who does have it are all different in many ways too.
To give you some hope, in the now over 12yrs mine has not gone full body & has remained on the right side only however if you've dealt with this for a long time w/ no dx or proper treatment, that isn't good either.
Please contact me & tell me what your symptoms are & I will share all I know with you. Also Irocket has it too; she can tell you things as we are both different in how it started, dx time, meds, etc. She's a great person here too.
There is a wealth of info online about RSD aka CRPS; wish they would quit changing the name as RSD fits better for my symptoms & CRPS is almost like Fibro, a bunch of different things all rolled into one.
If I can help you I would be happy too & honestly pray you don't have RSD; maybe you can even rule it out?
Never be sorry as what you came here for & are asking or telling is exactly what DS is for & the people who are here.
Hugs & Hope,
Rhonda

My NL gave me a script for fentanyl patches and my ins. co. refused to cover them. My doc had to call them personally to get them to cover it. It didn't help though and we had to check off another unsuccessful try.

I have RSD and the only thing that has been of help is my SCS.

If anything, now you get to see another Doctor, that migh-or might not be able to diagnose you, it is sad........ Hun, do you have a teaching hospital within driving distance? If all of these Doc's don't get you a concrete diagnosis, try to get to a teaching hospital and start with a Rheumy, and then go from there.

Doctor's in teaching hospitals tend to like discovery, they like to find the answers of what ails the patient, since when they do that, they teach and train the future Doc's of america. When I had my bout with lung cancer, my PCP at the time, send me to the University of Florida hospital to get a consultation, the University was 5 hours from home, but there I went! If I am alive today, and for the second time cancer free, is because I went to a University hospital, so think about that.

Hugs,

Tipper,

I will be going to a large teaching hospital to see a Rheumatologist. It my take a while to get an appt., though. The pain clinic is at another smaller hospital close to home. My doc wants to send me anywhere, but her office, I think. She's as frustrated and puzzled as I am.

At least I'll have new doctors taking a look at what's going on with me. I have a smidgeon of hope left.

Hugs,
Cherry