They tell me this all of the time. After being diagnosed with an extensive DVT in my right leg and large saddle PE in both lungs, the doc just patted me on the back and said you'll be fine you're young. Don't these people know that babies die from rare illnesses. How about having type 2 diabetes at age 35 when it's generally a disease middle age people get. Maybe the reaper is trying to knock some of us off a heck of a lot sooner than others. I hope they can figure out what's going on with you. I have been searching for some answers lately too but have decided to give up. I will wait until I have to go back to the ER for my breathing issues before I ask for more tests. Everything keeps on coming back normal but I feel terrible all of the time. The Mayo clinic is the best. They will dig deep until they can find something. Have you ever heard of mast cell activation disorder, sjorgrens (spelled wrong) or autonomic dysfunction. One of those can cause nerve issues. There are so many illnesses that can cause issues and be illusive. I have a rare blood clotting disorder, but I was lucky to receive a quick diagnosis. Hang in there. You will get answers soon.

If it was a young tech at Mayo she was probably just trying to make conversation, I doubt she meant anything by it. People often don't understand how "we" chronically ill patients taken innocent phrases so negatively...its not really their fault, they're just making conversation.

I’ve had doctors & nurses say this to me a lot over the years. I’m 34 now, a lot the times they’ve said it to me they were kinda saying it like they felt bad for me. Like I’ve gotten a lot of “it’s such a shame cause you’re so young”
Either way I think they are being nice or just blatantly honest but it gives me anxiety. But I also suffer from anxiety & PTSD so my reactions in my head are always over worried.
Sorry if this was a kind all over the place response but just wanted you to know my experiences with it.
Either way, it’s good you’re getting all those tests
Sorry you’re in so much pain tonight, I’m having a pretty big pain night too, you have my empathy.
I hope everything goes good with the rheumatologists tomorrow
((Hugs)))

She wasn't really thinking about how her comment would feel to you but it is true in a sense...you are too young to be so sick. You deserve to be out having fun. I am so sorry honey. I hope they can help you at Mayo...I really do. Fingers crossed...keep us posted. xo

I used to get a lot of comments about how I was too young for so many health issues. But at almost 50 now I have grown into mine.....

I’ll never forget being checked into hospital to get series of tests done & receptionist says “you’re to pretty to be sick” I remember thinking wth so only ugly people should be sick! & I know they’re trying to be nice but sometimes come on. & sometimes even though we feel awful we need to teach others compassion vs preconceived notions as to what a sick person should like.
But when you’re miserable it does make you want to hit them but we’ve been through worse than petty comments.
I hope you get answers keep us updated!