Chronic Pain Support Group

Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...

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Brain & Nervous System
/ Chronic Pain Support Group

I'm new to this forum

deleted_user
deleted_user
I usually post in the Fibromyalgia forum, but now my Neurologist has informed me that I also have lupus and DDD. I figured I'd kill 3 birds with one stone and post on the chronic pain forum.

Thanks for the welcomes I've gotten so far. I've gone for over 3 years with no pain relief....I finally decided to go to a Neurologist and fire my Rheumatologist. He wanted me to take Herbalife and lose 30 lbs. He actually had an Herbalife sales rep call me! The products they felt I needed would cost me $200 a month. I've read that Herbalife has caused kidney damage in some people. I've lost 40% of my kidney function because of diabetes and the doc that's pushing the Herbalife knows this. I was so pissed! Anyway, I'm going next Thurs. to a pain specialist for the first time. Any advice????
deleted_user
deleted_user
I'm not sure that I have any advice...just wanted to say hi and welcome you here. I'm pretty new here too. GREAT bunch of people here.
Maybe write down any questions you might have, so you don't forget. Write down ALL of your symptoms, so you don't leave one out. Any remedies, meds, etc. you've tried.
I wish you good luck....
ZAZAS
ZAZAS
Most have a pain scale, and a chart to draw where you hurt, just answer any questions the best you can, try not to be nervous. Most Pain Specialist understand what your going through.
deleted_user
deleted_user
Thank you! It's nice to meet you.
deleted_user
deleted_user
Yea zazasgranny, I received a packet from the Dr.'s office with a drawing and was asked to indicate and describe the pain in each area. I'm really nervous about this appt. for some reason. On one hand I'm afraid they won't give me anything for breakthrough pain. On the other hand, my Neuro said this doc has had great success with methadone. I'm on Vicodin now. Seems like a HUGE leap from Vicodin to Methadone.
deleted_user
deleted_user
I was on methadone and missed two appt because of prob that were not my fault. I was told to go to the er if my pain was more than I could handle until I could get in to see my pm doc. This was his nurse that told me this. One night out of desperation I called the er and asked if I came in could they do something for me. I was hurting and still so bad. The er nurse told me that I could try but the er doc will prob not go over my pm doctors head and not give me anything because I was on methadone. Oh man I have been so mad. I was lucky to have horded some of my lortabs and been taking them every 8 hrs as prescribed. I will have to anwsere for that at my next app but the pain has been like I was what I could imagine hell. There are some posts here on methadone. I don't know what I will do at my next appt. I don't know what he will do. One of the prob that I have run into is that if I don't see the pm doc then I am sh** out of luck. When I see my pm doc I am going to tell him about the er nurse. Don't tell me to go to the er then they tell me that the doc will prob not go over the pm doc. See a vicious circle? I do. Whatever you decide this is just something that I'm going through. Like I said there are a lot of good posts here to read.
deleted_user
deleted_user
I was on methadone as well. Went from percocets to methadone. I had excellent results with it. I took 60mg. a day, but I lived a pretty good life. Not much pain at all. Didn't have anything for breakthrough pain at the time.
My new doc wouldn't prescribe methadone under ANY circumstances. I was terrified, b/c I had no other doc to go to. Mine had left. But she convinced me that she could keep me out of my misery. Took some doing, but she's got me at a level I can live with...most of the time. She said that methadone has too bad of a history. That there is a long half-life, and people can get into trouble with that. Don't know if it's true or not...something to discuss with your doc. I know this much..I'd go back to the methadone tomorrow, if it were an option.
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