Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
I'd like to apologize to Bill, OCP, and all of the rest of you guys for my behavior last year. I went through a complete mental breakdown. It was one of the worst times in my life. I tried to go back to driving and ended up having a nervous breakdown in the driver seat which lead to a spiraling set of events that caused me to come vey close to ending my life. In the process I pushed everyone away. I have since grown completely malcontent with the medical profession. I have been receiving a bunch of weird diagnosis and some very strange medical conditions have finally been revealed to me through self-testing. I said some really rotten things to Bill. I am sotty bill for all of the unsolicited advice about diabetes. I never meant to be such a big jerk on here. I'm just fristrated with the disease and that I have to inject insulin ever time I want to eat normal food that isn't just a piece of meat and a salad.
I feel so vindicated now, but also saddened that I had to go to so many doctors to be told there is nothing wrong with me and to do 2 unessary CT scans and also one VQ scan of my lungs all because I feel so unwell when standing. I have since been diagnosed with Orthostatic Hypertension. When I stand up, my blood pressure will go from 116/76 to 170/190 over 116/125. Then back to normal as soon as I sit back down. I went to the ER after taking 50 mgs of Lisinopril for three days with a sitting BP of 140/100 shooting up to 180/120 while remaining standing along with some diastolic readings of 140 and 150 on ceveral occasions, fast heart rate, dizziness, and shortness of breath. At the er I went from 130/90 BP sitting to 176/20 after one minute of standing (all done in front of the doc) then my BP went back down to 116/76 for two hours straight while being admitted and resting comfortably in a hospital bed. Then as soon as I stood up again, my BP shot back up to 170/116. Again in front of the ER doc who was completely baffled. He didnt know what to prescrice because I was already on 50 mgs of lisinopril, apparently enough to make a regular person pass out.
I also have noted on my EKG again, but this time it meets multiple diagnostic criteria for Left Ventricular Hypertrophy. I had some protein in urine and discolored urine and some other abnormalities on some other tests, all dismissed by my doctor again as no big deal. But he finally diagnosed me with Liable Hypertension and relectantly referred me to a cardiologist. All other two abnormal EKG's two years ago were borderline diagnostic with this one meeting multiple diagnostic criterial. I too would dismiss the borderline ones, but with the EKG's progressing and the weird BP, something is going on here. After a bunch of trial and error, it seems that the only medication that stops the BP spiked is Clondine. I take between 2 and 4 miligrams a day. I still get some surges, but only up to 130/90. I can deal with that. One day I worked four 5 hours with a BP og 190/125. I had to. That lasted three straight days (only when standing) before I went to the ER nd finaly got a script for Clonidine. Now I take 20 mgs of Lisinopril per day and 2-4 mgs of clonidine. But I notice when my BP is whacking out because I unrinate every 20 minutes non stop when I anstanding.
I have been working part time for almost four months now. I was scared to death to take the job, but I did and somehow I have only managed to miss 1 day of work in 4 months. I am slower than the other peopel who work with me, but my boss is understanding bcause they have a hard time keeping workers. It's a job where we have to clean a huge building and they don't give us enough time to do it. I clean slower, but my work is good and I am always on time. We don't have a supervisor watchign us. We show up and clock in by phone and are left largey unattended. My first co-worker started coming in late and leaving early and finally got canned after so many complaints from the facilities manager. It is a union job, so I get paid holidays and 1 week paid vacation along with paid sick days despite it being a part time job. Some days I have to take extra meds and I struggle to finish my work. Every once in a while I have a good day and work like a mad man. I'm not sure how long I will be able to keep this job, but I leared my hard limitations. I have 4 aometimes five hours and then my leg swells so big and I can't walk anymore without huge amounts of pain meds. I also can't handle an 8 hour shift. I have had to cover for bad workers on the other side of the buiding becauce this company hardly has anyone else to cover shifts when someone misses a day. I do the 8 hour day and then I have to call off sick the next day and am affected for the rest of the week after that. There is no amount of meds that will make my function for an entire 8 hour day. None.
Any how, I have managed to save up some money, my cat is now in love with me and so friendly, I just have to carry her to the litter box once a day and force her to do or she will crap wherever she wants. It's a small burden for me to keep her out of a cage or from being euthanized in her last years of life. She just turned 17. Moms put me on the insurance so I can drive myself to the doctors and I pay 20 dollars every 2 weeks in fuel. I used the car to get the night time job. I love working nights. Every day I don't want to goto work. I just want to lay on the couch and die. But for some reason I force myself to get up in pain, take my shower and go to work. I take 1 pain med in the morning, then wait until I get to work to take another dose and a half. That way I am not driving under the influence. My pain doc is fully aware of how I do this and he is fine with it since I only drive 4-5 hours after my last dose of Norco. So, I got 3-4 sometimes 5 hours a day that I can perform then th eadrenailne wears off and I start to walk like a cripple for the rest of the day. I still can't climb the stairs properly and people always ask me what's wrong when they see me gimping up and down the stairs daily. Some days my pain is so great that I have to remove my medical compression sock. Other days I can't stand up for more than an hour without it. Circulation problems is a weird issue to deal with because the pain levels change from day to day. It's like playing the pain level lottery.
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Hi All.... It's great to see all of the new people joining the site... I'm loving it!!...smileI'm not sure if people are aware that if you don't have Bipolar Disorder but have a loved one who has the disorder we do have a board for people to go to in order to share their experiences and seek friendship, support or adviseIt's the Friends and Family of Bipolar Board.... I hope you'll take a...
Where is everyone at? This board used to be a thriving place for information. Well today my BP is acting crazy again. Had to take more Clonidine. I hate having to wonder every time I have a headache now if my BP is going to kill me. The blood clots were enough, now everything is failing. The human body is a very flawed design. Too many things can go wrong. I also have burning pain in my left thumb now. It is the same thumb where my fingernail just ripped and detached all by itself and never re-attached. It feels like someone is burning it with a bic lighter sometimes. I also get lightening zaps in my feet and hands now whenever my blood sugar goes over 140. Some days I just want to dump all the meds and pretend everything is fine. How are you OCP? How is everyone?
I wasn't being a smartass or dissing the mental stress you went through....but damn, when you just disappear like that. I looked for you on Boards all over DS, I sent emails to you to anybody that new you for months. When someone just disappears, in the frame of mind you were, when you did. I thought you were dead, honestly. And I've had 2 really good friends from this Site and 1 in real life die this year....so it's been a lot of death....more than my BiPolar and Self Harm tendencies could manage. You can read my Journal, I wrote what happened when I finally broke, I don't remember any of it, I know I spent a week in and out of the hospital and the total amount of stitches was I think 15.
I think people forget that there are real people on the other end of these posts....I did really think you'd killed yourself.
So, there are a select few of us that are still around but not many post here. I'm all recovered mentally and all better, lol, or as sane as I always am. Just busy with work and life and kids and Dr.'s. and Surgeons and Tests, so much fun.
If you plan on leaving again, leave a note okay.
The continuing shortness of breath years after clots in lungs were not lung issues but high blood pressure only detected when standing but normal when sitting. All that running around and then being called out for playing the victim card by the therapist just made me snap. I scared myself. I crushed up a whole bunch of done and was going to plug it and just wait, or drive up to the mountains, douse myself in cold water in the winter time, take 2 Ambien and just go to sleep while hypothermia kicked it. Then it would look like a camping accident.
I have very little family support. Me and moms have a very adversarial relationship, Kind of like they do on the housewives of new jersey. It gets really hard here at times and I have been rubbed so far the wrong way by the last therapist that I am done with all psychiatrists and any meds for the brain. No offense to you. I know you need them to function and I probably need them too, but I'm not in any hurry to add more meds to the ever-growing list of meds already on my list. I also had contemplated just going off my blood thinners and BP meds and taking Primatene. I tried I tone day for sleepiness due to untreated sleep apnea and it shot my blood pressure up to near stroke levels, while sitting down. I dared not stand up and cause a surge. I had to take Clonidine, Lisinopril, and Amlodipine, force a three hour nap, then my BP finally stabilized. No more Primatene for me now. I was doing well on the amlodipine and dine, but it caused my feet to swell so big I couldn't get shoes on.
I am just so malcontent with the medical field. I want cures not pills. But money is what you need to have in order to get good care. I have panic attacks when I think of losing the Medicaid and having to spend 600-700 a month just on doctors and meds, not counting tests or hospital visits. I would essentially be spending my entire paycheck just to manage my health and stay alive. It makes me feel like my life is already over. I've been building my credit with some credit cards and almost 2 years of on time payments, saving money, and preparing to start another company or some sort. I might even try and bust into the janitorial arena and try and scrape up a few contracts. Something where I can be a fill in when an employee misses and make sure we give good customer service and make a living until my diseases completely disable me. I have learned how to calm myself now. I can be raging with anger and I just keep myself calm. I'm learning better ways to cope all on my own. No one can make you change. You have to change yourself. Thank you for caring. I don't have very many people who care about me these days except for my cat. Animals aren't that hard to win over though lol. I also think I might have issues with mood swings. It's not normal to be mad at a therapist for almost two years straight. It's a personality disorder. I am spotting things in myself now. But no meds can fix a personality disorder.
I was so upset when I missed that one day in 4 months. I never miss work. But we have had so many employees come and go on the other side of the building that I was asked to stay and clean the entire building a few times. Doing an 8 hour day became too hard on that last day and I finally broke down and had to miss a day and take a three day weekend. Now the boss sends people to help me when someone misses on the other side. He is fine with me being committed to my 4 hours, because my side of the building never gets complaints from the customers and I never miss work. So, he didn't want to keep on pushing me to the breaking point. Which if he would have, I was going to have to quit. I really wish I could help him out more and do the 8 hour days from time to time, but it takes such a toll on my body that I can't do it. If I can make it working for 6 more months, all my credit cards will be paid off, my credit score will be in the 700's again, and I will have saved back all of the money I wasted in 2016 trying to drive the van again. I will then have enough credit, credit card limits, and money saved to start another business. Or I can keep on working part time for 20 years and have at least a modest social security built up and some savings. I am union, but part timers do not qualify for a pension.
If I could do full time, I could at least have 1500 in pension and 1500 in social security built up in 25 years. I can't do it though. Not even with 200 mgs of meds. The leg has a 4-5 hour hard limit and then it shuts down. I still can't climb stairs either. My leg will not get stronger no matter how hard I push it and if I climb the stairs normally a few times, my leg will be done. I can burn through all of my spoons/4-5 hour hard limit in mere minutes just my using my bad leg to climb the stairs. I still can't figure out why that activity won't come back to me. I have been on my hands and knees quite a few times and I can get back up without help now. That is something I haven't been able to do for six years. It still hurts, I still have to mentally prepare myself to do it, but I can if I have to, I usually do this twice a month when I have to replace the automatic hand soap dispensers under the bathroom sinks.
I literally agonized all day when they called me to come to work. I was scared to death to even go there. The first weeks were hell for me. I would become tired and sweat non-stop just from changing trash-can liners. I pushed and pushed and somehow made it. Sheer willpower and a boss who told me that he won't make the decision for me when I can't handle the job. He wants me to let him know when it is becoming too difficult for me, or if I find an easier job. Without this boss, I would have been forced out already. He really gave me a chance. I can't work 8 hours straight, and some days I am slower than a regular worker; but I sure as heck can do quality work, be on time every day, and never miss a day of work. That is how I make up for my slowness.