Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
Hey, everyone...
Most of you who know me here know that I rarely talk
specifically about my pain or my feelings...
I've withdrawn from the boards lately because I have felt overwhelmed
and frustrated for/with/by others pain....and have felt that words were pretty futile in the face of what people go through here..
I've just realised the last couple of days that those exact sentiments apply to myself..
I'm in a " flare" again ( or still.....seems it never does go away...just subsides to the point of bearability)...
Well....see....what's the point or use of saying something like that?
I've not felt this brought-down since coming to DS, in spite of having been through some really rough, potentially life-threatening times..
I am SO tired of fighting.
For some kind of quality of life...
To be able to give and recieve joy..
To not see everything through the dark glass of pain and sickness..
I've never felt so tired....so, so much effort for such little gains..
To end up back almost to where I started.
So..this is a CP site.....who isn't hurting and tired?
So, part of me feels like I need to talk about this here..
Because I am drifting away from here..
And from my family again...
And from the bits of me that I had found again through being here.
I'm sorry for such a down post...
I appreciate all of my friends here more than I can say...
I did find myself again here...
Luv n hugs...jc
Most of you who know me here know that I rarely talk
specifically about my pain or my feelings...
I've withdrawn from the boards lately because I have felt overwhelmed
and frustrated for/with/by others pain....and have felt that words were pretty futile in the face of what people go through here..
I've just realised the last couple of days that those exact sentiments apply to myself..
I'm in a " flare" again ( or still.....seems it never does go away...just subsides to the point of bearability)...
Well....see....what's the point or use of saying something like that?
I've not felt this brought-down since coming to DS, in spite of having been through some really rough, potentially life-threatening times..
I am SO tired of fighting.
For some kind of quality of life...
To be able to give and recieve joy..
To not see everything through the dark glass of pain and sickness..
I've never felt so tired....so, so much effort for such little gains..
To end up back almost to where I started.
So..this is a CP site.....who isn't hurting and tired?
So, part of me feels like I need to talk about this here..
Because I am drifting away from here..
And from my family again...
And from the bits of me that I had found again through being here.
I'm sorry for such a down post...
I appreciate all of my friends here more than I can say...
I did find myself again here...
Luv n hugs...jc
I remember a time when my PM advised me to stay away from the board for awhile, I was vulnerable, exhausted like you and reading of people I care about was mounting in my mind as to how hopeless this CP is......I had to take a break, I needed rest. I regrouped and came back. I'm glad I did.
CP is an energy Vampire of our soul and Spirit. When a flare hits, it's like being hit from left field. I wrote in another post how my PM explained to me our minds and bodies survive in survival mode, that in itself is exhausting on our nervous system etc.
What you are experiencing is Burn Out! You need to accept what you body is saying and shut down for awhile. Be still. Advise family not to worry......it's just something you need to do for you.
Because I used to be such a capable person, I also had to grieve for the me I've lost and get to know my capabilities on another level.
It's a lonely time, when a flare brings you to your knees. But we get it, Jan.
You are such a bright soul, your darkness would be more challenging. Be honest with family. I put a do not disturb sign on the door. Real kindness has to start with the way we treat ourselves.
When we are worn out we are depressed......reading of situations we can't help compounds. Some times, we just have to stop reading for awhile, it's healthy to do this!
I love you and your spirit so much. Please be kind to yourself. We all go through times like you are in. Listen to your mind and body and do what you need to do for you for now.............
We will still be thinking of you and sending white light your way, regardless if you post or not. You are loved.
X
Please don't crawl back in yours! You are one of the most wonderful people I have known and I love you. You don't have to read and respond to every post that is screaming pain. We are only human and can only handle so much.
Come here to let it out for yourself like others said. Holding it in is making things doubly worse for you.
Let it rip!
Love ya,
Sis
Please please please.... no matter what ... don't pull away/withdraw from us...
We need you, you need us...we hold each other up...
Even if you aren't up to posting- please check in as much as you can... you know we understand like no one else ...
Hang in there...
Talk to us as much as you are comfy with but if reading the board is contributing to things, perhaps you should heed what others have said and take a break.
We will understand...you can see that from what others have shared here.
I don't have to tell you the emotional toll CP takes on a person...please do whatever you can to relax, you've taken care of us so many times..now, do the same for you, ok??
((((((((gentle hugs))))))))))
Love ya kiddo,
Jenna