Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
I am sharing this from my journal. I am new here.
There is no end in sight. I must face this monster day and night.
Life is difficult.(first sentence in the book, The Road Less Traveled) I know everyone here does know how very difficult life can be. I would gladly trade this entire body severe pain 24/7 to be sitting in a wheelchair with no bodily pain. Last night again I lie in bed weeping not sleeping due to this PAIN. If there were an end in sight I could be courageous. Like if I were recovering from surgery for example or even dying of cancer. There is no end in sight and what is happening in my body is progressive/worsening, that is what I have to look forward to. If you suffer as I, it is endurance we need. There are a few other words I wanted to add to endurance but my foggy mind with memory loss and especially word loss cannot find those words right now. How do we cope with this crap and go on day after day not even feeling half alive? God, I wish I had some answers.
Sherry
There is no end in sight. I must face this monster day and night.
Life is difficult.(first sentence in the book, The Road Less Traveled) I know everyone here does know how very difficult life can be. I would gladly trade this entire body severe pain 24/7 to be sitting in a wheelchair with no bodily pain. Last night again I lie in bed weeping not sleeping due to this PAIN. If there were an end in sight I could be courageous. Like if I were recovering from surgery for example or even dying of cancer. There is no end in sight and what is happening in my body is progressive/worsening, that is what I have to look forward to. If you suffer as I, it is endurance we need. There are a few other words I wanted to add to endurance but my foggy mind with memory loss and especially word loss cannot find those words right now. How do we cope with this crap and go on day after day not even feeling half alive? God, I wish I had some answers.
Sherry
my name is lorraine and i suffer from regional pain syndrome where i to suffer 24/7 in pain .......all i can say is try and do something to distract yourself and not think of the pain i know somedays and more painful than most.
i cry most nights as i cant sleep with my loved one and i sleep in the chair its the most heartbreaking thing i do i would rather sleep with my loved one and to cuddle my grandchildren is painful also but i must do it or there going to grow up without the closiness of there nanna.
i pray most days either cure me or take me as i have no quality of life thats on my bad days.
i'm on a pain mangement programme with gapentin 900mg x 3 and some nerve tablets at night.
so sherry my heart and thoughts are with you and may god give you a painfree days.
lorraine..xx
Learning to cope is about the best any of us can do unfortunately and truly revel in the few times when it's not quite so bad. I do know that keeping the mind active can help some. distracting you from the pain as weird as that sounds. Perhaps starting a newsletter or something of that sort. Perhaps writing letters to your kids and grandkids or future grandkids your true feelings towards them that they will get when they are old enough to understand. Basically anything that "might" take your mind off what your body is doing. Unfortunately there are no easy answers but finding something to keep your mind active has helped me a lot.
I wish you luck.