you have to accept you condtion hon youll hear lot of feeling bad becuse you cant finsh things you morn what you have lost . im glad to see your boyfrind exsepts you ordeal like he did that was really nice of him hugs minnie

what kind of pain do you have? is it controlled? maybe you could go to a pain clinic. I have pelvic/low back pain and work pt, thats all I can do. take care. pm me anytime if you want.

i know exactly how u feel x

hope ur feeling better soon x

I totally understand your feelings of guilt and worry. I also had to go through this never being able to return to work again after the on the job auto accident that caused RSD. My employer held my job for over 1yr which they didn't have to hold it beyond the 12 week Medical Leave Act.
I truly thought I had a broken foot for 3mos until I was tested and diagnosed with RSD truly believing I would return to work within weeks as my job was selling vehicles and I was on my feet most of the day up to 6 days a week.
You need to know that getting the care you need & to know that you have to take care of you is the more important than any job. It does come to the realization of acceptance of what is best for you & I know you can get there in time & what you are feeling now is normal.
Best wishes,
Rhonda

its a tough one...The worse one for me of missing things was I was in a bad way..my daughter when she much younger was getting an award she looked at me ..her face when I was unable to go...

I'm in the same boat accept for i've already stopped working all together, i really really hope it goes better for you, and im sure it will so feel better soon and try not to let it get you down

Hi,
I sure can relate to the guilt and worry that you are describing. I don't have any easy answers. But you certainly sound like a very conscientous young woman who wants to work! The hardest thing to do sometimes is accept your current limitations.
I am sending good thoughts your way. Also, if your doc says you can take more time off, you must be suffering enough, without adding "beating yourself up" to your list as well!
Best wishes. Hang in there! -Kristi :)
ps have you ever considered temporary use of an anti-anxiety med? It sure has helped me at times when I have been very nervous and overwhelmed. Just a thought...

Hi fisherkid

I am so sorry that you are going through this. This is way too much to handle at any age...especially so young but, you have been handling it and that only goes to speak to your strength.

I do not know all the intracacies of your condition and I can only imagine the pain you go through. I don't know how controlled your pain is and I think that might be worth some time investigating into long acting and short acting pain relievers. Don't be afraid of them.

I would also advice counseling. You are very young and your life energies cannot be held to the "normals" standards. If you constantly fight to make your life normal....you will most always fail to reach your own goals.

You have a condition which requires acceptance, medications, medical intervention and adjustments. Do yourself a huge favor---LOVE YOUR SELF! Allow yourself the opportunity to say "I am sorry, I can't be there today" or "I will be at your party, but I can only stay an hour or two". Also, if your pain is unpredicatable...then, how can you hold yourself accountable to your "failures"? If you cannot predict the issue, you cannot prevent it from interfering with your life.

BIG SUPPORTIVE and SOFT hugs to you.

I am so sorry you are going through this, and you are def not alone, I am right there with you and I am also only 23 years old. Hang in there and know that you have tons of love and support right here and I am always here if you ever need. It always hits me hardest too when I miss out on things bc of pain or bc of my MS. I think sometimes it's the hardest part of the whole thing. Please hang in there and really I am always here for a chat! Bridge :)

thanks everyone. i have pelvic floor dysfunction (chronic pelvic pain). the pain is much more under control its just so unpredictable i get bummed out everytime i think im cured. i am learning to cope and mourn the fact that i will prob not ever be cured, just how to get the pain handled and managed. the therapist and drs i see all specialize in group treatment for my exact problem all in the same location. and my therapist is actually the one whoo suggested this. since im stubborn it took me a while, but this is one of the better things i have found to help with the more emotional and social problems. as matter of fact, after taking the step to try this online support group, i even reached out and introduced myself to some new ppl and hope they resond as kindly as all of u. thank u again

It's already been said, but accepting this is important to getting on with your life. Recently, my Dr threw up his hands, not knowing what else to do for me. He sent me to pain management and pretty much said 'sorry, I cant fix you'. I got pretty depressed for awhile. It's a tough thing to accept, but once I did, I felt so much better. This is my life now, for better or for worse. I make the best of what I have and I still have a lot. You do too. You also have a wonderful, understanding bf. That's awesome!
One more thing, I believe (and so does my PM dr) that everybody dealing with CP can benefit from an anti anxiety/anti depressant medication. It does help. A lot.

I try to find things I can do with my husband and try try try to ignore what we can no longer do. I try to dance with him when music comes on but no more hours of it...just a quicky :) I feel guilty sometimes too but it's not our fault. I'm trying instead to focus on what we can share. It's just part of this thing we call pain. You aren't alone.