Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
I have had enough of unsolicited advice for my migraines and I am just sick of everyones stupid opinions on what I should do. I've had it all my life and it is so friggen painful so OF COURSE I've tried everything. Hell, I even signed up for an experimental trial to have my heart operated on. (I failed preliminary tests).
whenever someone hears I have migraines or I'm having one at the moment, out comes....."have you tried....(my most hated) accupuncture or excedrine or coffee or no coffee or feverfew or butterbur or an elimnation diet"" or whatever else comes to a persons mind. For heavens sake, few other people with diseases get subjected to this kind of CRAP! If I had MS or Epilepsy or Strokes or was in a wheelchair or with a cane I wouldn't get NONE of this!
You wouldn't beleive the barrage of questions that I have to politely endure while inside I just want to scream SHUT UP, DO YOU THINK I AM SO USELESS AS TO NOT TRY?
I usually wind up telling them that if you take a picture of a migrainer's brain, there are white spots because we are having mini-strokes. People don't understand the seriousness of this disease. Most times now I just clam up and change the subject.
It HURTS SO BAD that I can't speak words properly sometimes. Please please please don't be a hero and offer me advise. I am not talking to anyone here in particular so please don't think it is directed at you. I really do know that people mean well. I am just conveying what it is like to be in my shoes.
I am not an expert in anyone else's pain and suffering, so why do people feel compelled to be so with Migraines? It's not a silly headache. Don't treat me like I'm having one.
Thanks for letting me vent.
whenever someone hears I have migraines or I'm having one at the moment, out comes....."have you tried....(my most hated) accupuncture or excedrine or coffee or no coffee or feverfew or butterbur or an elimnation diet"" or whatever else comes to a persons mind. For heavens sake, few other people with diseases get subjected to this kind of CRAP! If I had MS or Epilepsy or Strokes or was in a wheelchair or with a cane I wouldn't get NONE of this!
You wouldn't beleive the barrage of questions that I have to politely endure while inside I just want to scream SHUT UP, DO YOU THINK I AM SO USELESS AS TO NOT TRY?
I usually wind up telling them that if you take a picture of a migrainer's brain, there are white spots because we are having mini-strokes. People don't understand the seriousness of this disease. Most times now I just clam up and change the subject.
It HURTS SO BAD that I can't speak words properly sometimes. Please please please don't be a hero and offer me advise. I am not talking to anyone here in particular so please don't think it is directed at you. I really do know that people mean well. I am just conveying what it is like to be in my shoes.
I am not an expert in anyone else's pain and suffering, so why do people feel compelled to be so with Migraines? It's not a silly headache. Don't treat me like I'm having one.
Thanks for letting me vent.
Like you, I've tried everything -- pain management docs won't take me anymore because i've already had everything done!!
Yes, I know they mean well like you said -- but good grief, I haven't just sat here and wallowed in pain !! I've looked for answers too.
So I can sympathize with you. Guess all we can do is say "Thank you" nicely, and then forget it. LOL Take care & I hope you feel better. Hugs, Lee
i know exactly how you feel
i recently had a "doctor" tell me to take vitamin D suppliments and that would stop the pain in my shattered arm.
ahem...
while my body sat there, stunned, not knowing how to react to such a stupid statement... my mind wanted to throw her out the window... good thing the body won that one...
a friends dad recently told me, "its just pain, just shut it off, its that easy"
...
ive stopped telling people it hurts... if they ask about it, i brush them off as fast as i can and often just leave if they start talking about it
I pray you wake up tomorrow with no pain, and stay that way.
Gentle hugs.
I just read that Turnip Roots work Wonders.....bet this is getting old!! LOL
My son, who has always been terrific, had his first migraine this year. He was a soldier serving in Iraq and called me to apologize to me. He wanted me to know that for the first time he really understood the pain I dealt with on a daily basis. I think that people have experience pain before they understand it. And all the unbidden advice you can let go in one ear and out the other. People do want to help, it is in our natures, but with some problems there are no easy answers.
Hugs, Cathy
I have a lot more wrong with my body than just Fibro! I've tried all the alternative possibilities and there has yet to be an article containing anything I haven't tried or heard before!!!!
All I need is to do Yoga...HA. Like my body could twist like a contortionist?
Have you tried Aleve? (grrrrrr)
Imitrex, but you probably have.. If not, it works wonders !! Hang in there girl.. The sciencetists will find a treatment that works & hopefully a cure!!! Good luck Kimmy
As SOON AS I hear the words... *have you* I know whats coming next ... "have you tried..." blankety blank... and / or... "my sisters boyfriends mom did...XYZ...maybe YOU *should* try that..."
I HATE HATE HATE it!
Oh yeah and the real winner; is when they suggest something and you tell them that you have already tried that and it didnt work for you etc etc... they look at you like you are someone that doesnt *want to get better* or wont take advice... So therefore; they have "done ALL they can" SO AGGRAVATING!
I understand.
I have told people before that they were the ones who asked about me and if they are going to do that then I don't want to talk about it . Yes , they get offended because they are trying to help however they need to learn about bounderies .
hope you get better and we don't like that either :)
I think most people mean well, especially if they have suffered or know someone who has suffered migraines. At least they have a clue of what you are going through.
All the doctor's remedies have not worked for me and are expensive. I have been able to cobble together something that helps me from all the advice that has been tossed at me whether I wanted to hear them or not. When I was new to this and desperate I tried just about everything. The helpful often think there is one thing that just works and what do I mean not for me! Sigh....
On the other hand if you are talking about people here giving you advice, well that's kinda what this place is about. Listening and sharing what has an hasnt worked so perhaps just reading what they have to say will help. You're gonna get unsolicted advice in here no matter what because people want to help, and feel that's what they are doing. WE cant be expected to know that you dont want advice, you have to tell us you just want to vent otherwise you'll get advice out of concern and caring - not because people want to tell you what to do. take it all in context and if gets bad hit the ignore button on people.
Monkees documentery coming on - time to go!!