Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
.......I keep hearin' about how vague I am about my condition/s.....
Like many of you...I could write a dang book...if I could write a damn page :-) :-) :-)
Already known....DDD...blown cervical discs...post-fusions pain...stenosis......all the usual spine stuff...
Recurrent shingles with Post neuralgia in multiple areas...
Sometimes without rash...so, potentially RSD......and how do they differentiate?........ they don't
Recurrent, severe, and almost unstoppable muscle spasms as a result of negative reaction to SCS implant test....
Pain ......just about everywhere at different times...muscular, skeletal, neuralgic.........well...many of you know yourselves......
My " flares include inability to keep food ( and sometimes even meds) down........fevers that can only be brought down to around 101 with tylenol, anti-virals and antibiotics.........and intensified pain....
Complications from malnutrition....
OK....that covers a lot of it........as y'all can see........just like many here.
Yesterday....FINALLY.....Immunologist Dxed auttoimmune disease........
And, yes/no....that's still non-specific....there are 80 to 100 something auttoimmune diseases.............
But....it's a Dx...and, I'll take it.....
Continuing prednisone for a month...then adding plaquinil.....as long as heart stress test doesn't contradict that treatment....
My Immuno doc said yesterday it had been kinda risky for him to start the prednisone without a difinitive dx......but...the reaction to the prednisone confirms dx........man, am I lucky to have a doc willing to go outside the box.....
He said he just wasn't willing to keep watching me die any more.
See....this is one loooong, boring story that we hear always here.....
Hope I was clearer about my issues.........
I GOT A DX!!!!!!!!!!!!!!!!!!!!!
Hugs...jc
Like many of you...I could write a dang book...if I could write a damn page :-) :-) :-)
Already known....DDD...blown cervical discs...post-fusions pain...stenosis......all the usual spine stuff...
Recurrent shingles with Post neuralgia in multiple areas...
Sometimes without rash...so, potentially RSD......and how do they differentiate?........ they don't
Recurrent, severe, and almost unstoppable muscle spasms as a result of negative reaction to SCS implant test....
Pain ......just about everywhere at different times...muscular, skeletal, neuralgic.........well...many of you know yourselves......
My " flares include inability to keep food ( and sometimes even meds) down........fevers that can only be brought down to around 101 with tylenol, anti-virals and antibiotics.........and intensified pain....
Complications from malnutrition....
OK....that covers a lot of it........as y'all can see........just like many here.
Yesterday....FINALLY.....Immunologist Dxed auttoimmune disease........
And, yes/no....that's still non-specific....there are 80 to 100 something auttoimmune diseases.............
But....it's a Dx...and, I'll take it.....
Continuing prednisone for a month...then adding plaquinil.....as long as heart stress test doesn't contradict that treatment....
My Immuno doc said yesterday it had been kinda risky for him to start the prednisone without a difinitive dx......but...the reaction to the prednisone confirms dx........man, am I lucky to have a doc willing to go outside the box.....
He said he just wasn't willing to keep watching me die any more.
See....this is one loooong, boring story that we hear always here.....
Hope I was clearer about my issues.........
I GOT A DX!!!!!!!!!!!!!!!!!!!!!
Hugs...jc
i really admire your strength and humor in the midst of this.
love and hugs, serenity
Sorry you are up against it all, hope once they figure out auto immune disease you will have further help!
You are sounding cheeky again, so I'm thinking you might be feeling a little bit better......hope so! X
Shoes........haha....I'm actually feelin' not to bad for someone who's feelin' so awful..hahaha
hh
WE ALL endure so much every day.....
WE endure...believe me...I wasn't good at it without you guys.
Hugs...jc
Thanks for sharing this with us...continued support!!!!
Big hugs...
As for your conditions...I know that this has been something that you and I have talked aobut (me wondering) it seems I have not been the only one. LOL!
I am sure that all the typing was difficult for you. Please know that in my perspective and, probably most others...Knowing what each other deals with greatly helps us to understand the person we are supporting, the person we have befriended.
I know for myself too...I often do a lot of research to truly understand the ramifications of the multiple illnesses I have seen on here.
Not only has it increased my knowledge in general but, it has also allowed me the opportunity to feel that I can be more supportive to my friend when. I understand their issues more fully.
My hugs and support to you my friend. Thank you for taking the time and expending the energy to open up.
In support!
Love your little undifferentiated self,
Theresa
He thinks Lupas is a real possibility...though the markers for that keep coming negative for me...
For just the time being, though...the focus is going to e turning around my immediate health problems....the meds I mentioned...getting another heart stress test....putting on more weight...finding a way to control these muscle spasms....and so on and so on and so on....
Once I get in better shape again...we.ll get that DX refined, I'm sure..
I've always been a little unrefined :-) :-) :-) :-)
Hugs...jc
Thesajo....can't get anything by you, can I, my friend.......you got that right......now I get to say..."YES, MOM, I DO HAVE A DX" HAHAHA
( how old am I gonna have to ve not to still be amswerimg to Mom?)
Of course...I'll downplay the undifferentiared part.....it's hard to type anyway :-) :-) :-)
Hugs.....jc
..we should probably ad undifferentiated...but it's a b*$ch to type :-) :-) :-) .
Hugs
really do think you're divine - what a bunch of troopers, survivors, thrivers, uplifters we have here...kudos for all we go through and do!
I'm ever so glad you have a good dr. that will think outside the box...seems there are far too few of them.
I am in total admiration of you and others that go through so many tests trying to get to the bottom of things.
Thanx ever so much for sharing, especially with us newbies. Hate to ask questions because I don't want to be seen as nosey or prying.
Please know you are loved, cared about and prayed for....please, when you are able, let us know how things are going.
((((((((((((((gentle hugs))))))))))
BTW......no.....virus and this unrelated...I mentioned number of viruses in reply to Cherry 'cause I've had God knows how many tests for viruses. My Immunologist is pretty sure I have an underlying virus.....told me last year after test after test after test that they could do HUNDREDS and not find it......Uncle. :-) :-) :-) :-)
You guys are sure the greatest friends and support.......
Hugs.....jc