Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
Those who followed my saga of kidney stone blocking ureter, a partially failed lithotripsy and ridiculous amount of waiting, there's a new chapter to the saga.
I finally got info that my CT scan (which followed a KUB and ultrasound) shows that the fragments of the stone that were partially broken during lithotripsy, are finally gone. My kidney is no longer swollen, although it did get too large for comfort for awhile.
I've been referred to a nephrologist (or will be following another 24 hour urine collection) and will now deal with Medualarry Sponge Kidney Syndrome or something like that. I'm told that I may need to switch my RSD pain meds b/c morphine might be bad for the kidneys. My CP doc said I'd be switched to Dilaudid most likely but I'm praying that I stay as I am.
So while my kidneys ARE full of stones, there aren't any too worrisome at the moment. They'll measure every 6 months. There was NO explanation as to WHY I had to wait so long (The 1st symptoms were on December 21st, I think) and no answer to why the litho didn't work 100 percent.
The important part is that I am no longer carrying around a stone in my ureter and swollen kidney. Hopefully they'll find a way to deal with it all soon so it doesn't happen again.
I want to thank everyone who messaged and emailed and left posts. It was a VERY long few months but it was so great to have friends to talk to here.
Much Love and my prayers for no pain for all,
Jen :)
I finally got info that my CT scan (which followed a KUB and ultrasound) shows that the fragments of the stone that were partially broken during lithotripsy, are finally gone. My kidney is no longer swollen, although it did get too large for comfort for awhile.
I've been referred to a nephrologist (or will be following another 24 hour urine collection) and will now deal with Medualarry Sponge Kidney Syndrome or something like that. I'm told that I may need to switch my RSD pain meds b/c morphine might be bad for the kidneys. My CP doc said I'd be switched to Dilaudid most likely but I'm praying that I stay as I am.
So while my kidneys ARE full of stones, there aren't any too worrisome at the moment. They'll measure every 6 months. There was NO explanation as to WHY I had to wait so long (The 1st symptoms were on December 21st, I think) and no answer to why the litho didn't work 100 percent.
The important part is that I am no longer carrying around a stone in my ureter and swollen kidney. Hopefully they'll find a way to deal with it all soon so it doesn't happen again.
I want to thank everyone who messaged and emailed and left posts. It was a VERY long few months but it was so great to have friends to talk to here.
Much Love and my prayers for no pain for all,
Jen :)
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Can you identify these rom-coms from just a screenshot from the middle of the films? This is a multiple choice quiz so even if you're not entirely sure you can always take a guess and at least have a 25% chance of getting it right anyway, so why not have a go?! https://www.buzzfeed.com/alysaurus688/rom-com-screenshot-trivia-quiz
Take care!
Lynn
Thank God for answered prayers. The kidney is no longer swollen so much and the broken stones sound manageable. Will continue prayers for you, that the specialist finds answers that can prevent or at least help control these miserable stones.
Sending lots of positive energy and continued prayers,
Hugs-RJ
A great start.
I can't believe you haven't been referred to a nephrologist until now.
It's good to hear you sounding hopeful!
His
jc
But so far, so good. Battling a crazy sinus/eye infection and it had seemed better after a course of amoxicillan but now seems to be returning. My left eye is still crazy fuzzy- so bad that if I close my right eye I can't read a thing or tell the time. Sometimes I feel like if there's a weird illness it's coming my way! But knowing the stone is gone made me breathe easier.
I'm currently fighting the RSD pretty bad, too, as the cold here is making a mess of my foot. But I was invited for 2 free days at Caesar's Windsor & I had a blast just chilling, watching PPV movies and playing Blackjack. 2 days to myself- great medicine! They're offering me free nights every week in Feb-March and a free gift. Todays' was a Gordon Ramsey pot and next month it's high quality bedding. With J in school all day and Mike at work, it's nice to go once in awhile and treat myself or let myself be treated. :)
Thanks to everyone- you guys helped so much. I think when you're a CP patient, you have an empathy that others just don't. It's not their fault, it's just that we all KNOW what CP is like, how it can make or break you. So again, thank you ALL. :)
Jen.. have you ever been checked for autoimmune disorders?
That RSD/kidney/eye trifecta is kinda worrisome.
Thanks for the update.
Hugs
jc