Communicating with Doctors
Anybody else feel like they struggle to communicate with their doctors? Any tips for communicating better?
I have an upcoming appointment on Friday with my PCP, and have been thinking about the things I wish to convey. Thus far, it feels like I haven't been able to advocate for my pain control needs with my doctors. I'm really floundering at work due to unmanaged pain. It's often difficult to focus my full attention towards clients due to my pain level. Basic office tasks like writing, stapling, and thumbing through papers take me twice as long as they should and leave me in tears. I know that this is stuff that's relevent to pain management and that my doctor should know.
But then... I get into the Dr.'s office, and when the words come out, everything sounds like it's just a minor inconvenience, like I'm doing fine overall. When I was a teenager, so many doctors accused me of overexaggerating; I think that's part of why it's hard for me to express myself accurately.
Can anyone relate? Any suggestions? Any success stories you'd like to share? (Or, of course, cautionary horror stories?)
My family is having dinner tonight, a lovely Saturday for them. I was invited, but there isn't enough gas in the car to go over. I spent 20 minutes today listening to my Mom's epic struggle to find the right light bulb for her bathroom and how difficult that was, then the fight she and my Dad got into over the light bulb. She finally gets around to asking how I am, and when I tell her how much...
Thank you for all of this pain that never leaves my body. Thank you so so much for helping me find this forum and friends on DS, and all of the other wonderful people doing their "Time" in "Hell on Earth" with me! I am considering my "Time" as a full payment for my castle and automatic gate opener to Heaven! In Jesus Name I Pray. Thank you! Amen. I am a True Believer in God and Jesus Christ!...
Does anyone else find relationships are hard to come by when you have CFS or other health problems? I met a gentleman who was willing to overlook my health because "I was a sweetheart" (his words, not mine). According to him, I was worth it. Well, today he let me know he could never live with my health issues so we parted ways. It was very hurtful.
HiWas on oral MTX for 4 weeks bad extreme fatigue, stomach pain, nausea, and diarrhea. So took a week off and started MTX injections. Still nausea, extreme fatigue, stomach pain, diarrhea not as bad. Feel discouraged because RA symptom have not improved. Has this happened to anybody else? I have a call in to my Dr. but still waiting....Thanks WW1978