Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
My family is having dinner tonight, a lovely Saturday for them. I was invited, but there isn't enough gas in the car to go over. I spent 20 minutes today listening to my Mom's epic struggle to find the right light bulb for her bathroom and how difficult that was, then the fight she and my Dad got into over the light bulb. She finally gets around to asking how I am, and when I tell her how much pain I'm in, she tells me she has too much going on right now to think about that. I have a genetic, untreatable degenerative disease that basically makes my bones break, my joints dislocate, and every tiny bump turns into a huge bruise. The last job I worked I broke my foot just from standing all day. My parents pay my rent, which I appreciate, but they seem to think that it's a replacement for emotional support. The price that I pay for their support is that I am bombarded daily by my Mom's marital problems, issues with her friends, or the unending home remodeling that my parents have been doing since I was two years old.
My husband has observed that I can go from a perfectly fine mood to crying all day after talking to her. It seems especially true when I'm feeling good and she's in a bad mood. She is so negative about anything hopeful I have to say about my life, and she shuts down any ideas I have immediatley.She asks every day if I've heard anything about my SSI case (on year two now!) and then spins a whole negative scenario about what will happen if I don't get it. If I talk about any new treatment, she says "You probably won't have Medicaid anymore by then". My Dad is career focused and pretty emotionally unavailable, especially when it comes to my Mom or my health. They constanly tell me that they have my back, that I won't end up on the street, but then she completely undermines any sense of security I have. For example, I was talking about someone we know having her antiques valued for her estate. My Mom says "Well, just so you know you're spending your inheritance now." What? I was talking about antiques! Then she says "You now, just so its fair to your brother." WTF??? What about my life, or anyone else's, is fair? Is is fair that I inherited a condition that makes my joints fall apart? Or that I can't have children? Or that I spent six years in school getting two degrees that I am too sick to use? Life isn't fair! It's just a fact, and I don't like talking about what's fair or not. My interactions with her often leave me feeling like there's no point in trying to cope with my pain, and like I should just give up, as in early checkout, no more pain forever.
Okay, that's a bit off track, but it's a pretty good example of the kind of interaction we have. I am in counseling, and fully aware that she and I are codependent. No matter how much progress I seem to make with this issue, she still has so much power over me. I can't break free because I would be homeless. I can't confront her because if I even gently suggest that something she's done is inapropriate, she bursts into tears and I end up comforting her. It's so confusing because I truly love her and we were really close before I got really sick. No one else in my family will go to any form of counseling at all, so that's out of the question. The fact that I see someone means that I'm the crazy one to them, so it's very easy to dissmiss my feelings. So, the question is, is there a way to break free from this cycle without alienating my Mom or losing the assistance I have? Is it worth it to accept their help when my mental health is so damaged by these interactions? Do I even have any other options?
Thanks for reading. Hugs to all.
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Hi All.... It's great to see all of the new people joining the site... I'm loving it!!...smileI'm not sure if people are aware that if you don't have Bipolar Disorder but have a loved one who has the disorder we do have a board for people to go to in order to share their experiences and seek friendship, support or adviseIt's the Friends and Family of Bipolar Board.... I hope you'll take a...
Have you ever considered that your mom is not capable of giving you the emotional support that you want from her? That by paying your rent that is her way of supporting you and that's what she's able to do? If your parents are not wealthy, then you might actually be spending your inheritance now, that might just be the reality of the situation. I don't know many "late in lifers" that can afford to pay all of their bills and also rent and such for a grown child. Heck my grown son has been living with me for the last year while he gets some things sorted out and he's damn near bankrupted me.
As for the codependency thing: You see a Therapist, you pay a Therapist, its time to make the Therapist earn his paycheck. Your Therapist should be able to give you coping skills, tools and alternative ways to handle your mom when she's being negative or when she pulls a crying jag if you stand up for yourself and set something straight. If your Therapist can't give you that basic knowledge, it's time to find a new Therapist.
When your mom starts to "cry" because your honest with her about your feelings, you need to train yourself to ignore the tears, say what you need to say and then finish it with something simple like, I'm sorry this upset you, but you needed to hear it. Or if you can't talk to her, write her a letter.
Everyone has a different way of dealing with emotions, your mom doesn't sound like she had a very good base for doing so to start with. On your part you can't make it sound like its your parents fault that you have this medical condition. Some of her tears and being upset may be guilt over "what she gave you"....even though there was absolutely no way for her to have known.
These things are rarely black and white, you just have to peel back the layers 1 by 1 and deal with what comes up.
Hang in there and take care,
kat
Gandalf: So do all who live to see such times, but that is not for them to decide. All we have to decide is what to do with the time that is given to us. There are other forces at work in this world, Frodo, besides the will of evil.”
Kat- I'm sorry I responded rashly. People can't guess what would be helpful to a stranger in any given moment. I appreciate that you took the time to write a long and thoughtful response. I hope my reply wasn't too harsh, but I think it was. I'm not usually so abrasive. For what it's worth, I got really mad at my therapist when she also told me to confront my mother. I don't express anger often, and when I do it just all comes pouring out. Thank you for caring. It helps just to know someone's out there.
-Maggie
This morning I took the above advice and told my Mom that there are a few subjects that I can't talk about because it's not good for my recovery. She actually took it pretty well, but I still had to listen to 15 minutes of her latest fight with my Dad. I took a cue from ReaDyo and kind of hummed a Bob Dylan tune in my head. It helped. I really appreciate the time that other commenters have taken in responding. I feel like I have a lot more clarity.
ItsJustMe2012- I don't qualify for SSI even though I worked for twelve years as a cook and baker before I got sick. I live in a low wage state and just didn't make enough money, I'm applying for SSDI with the help of a lawyer and full support of my medical team. My husband has a severe temporal lobe disorder that causes seizures several times a week, so income and assets are not an issue either way. He will be applying for SSI, but he can't until he's had three unsuccessful medication trials. Thanks for the input though, it's pretty complicated!
You didn't hurt my feelings or come off to harsh. None of this is easy. You put yourself out there not knowing what your going to get in reply, it can be stressful. Your predicament reminded me of the things my own mother used to do before the died 4 yrs. ago. The woman could drive you mad, calling you up acting like it was an emergency when it was something very minor aftet you'd driven like a bat out of hell to get to her house. It was hard.
You're giving a lot, but your not getting a whole lot in return and that is so unfair. I truly hope that you find the right answer to this problem soon. And don't every worry about hurting my feelings, I have pretty tough skin.
Take care,
kat
SSI is not based on work credits. If approved, SSI is based on income and resources. If someone is approvded for SSDI and their monthly benefits are less than $755 a month in 2017, if they are eligible for SSI they can receive the difference in SSI to make up the SSDI so they receive a total on $755 a month. Medicaid also comes with SSDI.
If someone is low income or they are approved for SSDI and SSI, Medicaid will pay their monthly Medicare Premiums, co/pays and deductibles. Their co/pays for their prescriptions are no more than $3.30 for each generic and no more than $8.25 for each brand in 2017.
I really appreciate your taking the time to comment. Applying for disability is a maze of bureaucracy! I'm sure a lot of other people also find your knowledge on this subject helpful. :)
BTW- My original posts, as I explained, were written during a severe panic attack. These are my darkest thoughts when I am depressed and do not reflect how I feel all the time. I left the posts up because I thought it would be helpful to have some reflection into where my mind goes at these times. I'm trying to be honest about my experience, but some comments make it very difficult to open up.