Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
jayman2016
Hello I am new around here. I was around about a year ago but forgot my password and email. It's been a long odessy, and I don't expect answers here I just frustrated and need to vet. In 2010 I had a sudden episode of nerve problems. It started with feeling like electric shocks going down the spine, followed by weakness, numbness, blurry vision, and muscle spasms. It last for a month or so. I had a mri of the brain it showed a very small, non spescific lession in the brain. They said it was too small to cause any symptoms and it was probably nothing. I got refered to a lyme doc. She ran the western blot, the elisa. Send to the lab in ca. It was all negative. I'd had a tick bite with no symptoms in 08. Their were 2 numbers that were a little high, that could have ment infection but the lab said it was too long after the bite and those numbers were false positive. Further studies should be normal. My lyme doc covinced me to try antboitcs for lyme. I was on antiboitcs for lyme for 6 months. Nothing changed. No effect. The repeat western blot was negaive just as the lab said it should be. In 2015 I had my second attack. This time worce then the first one. It went away after a month, this time thou I had kept having miny attacks. With burts of electric shocks, numbness, weakness, more so on the left then the right, and muscle spasams. I had another brain mri it showed the same lession this time it's grown. The radiologist was worried it may be a hint toward ms. I then had a third brain mri at a different clinic and this radiologist thought it was so small and meanless he charted normal mri. I just had a cspine mri and that was normal. I am currently labled as low probably for ms. I am going in for a lp next week. I am really frustrated to what's going on. I am going back to my lyme doc just to see what she thinks. It's been very frustarting. thank you for listening.
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Good luck with the lumbar puncture. I should think that would rule out MS.
My cousin lives in Missouri and had tick fever. She was sick within days after the bite. Antibiotics for a month and in the end traveled back to California to her old naturopath for meds that healed her.
Even then it took another three months. I am not familiar with the difference between the two tick borne diseases.
Let us know on your LP results. Welcome to the board.
hippy
J
It is well worth the $$$ and I highly recommend it to anyone. Check it out and see if it is for you. Again, that is Roboform.
God Bless
I'm assuming that at least one of the Dr.'s you saw explained that there is no definitive test to diagnose MS. Diagnosis comes from ruling out other illnesses, 1 at a time, sometimes.
You might try keeping a pain journal and being very diligent about writing every symptom down, when and where it occurs, what you were doing, etc. Be as specific as possible, that information can help give Dr.'s answers.
Take care,