Chronic Pain Support Group

Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...

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Brain & Nervous System
/ Chronic Pain Support Group

Being perceived as hypochondriac...

alitlmorsly
alitlmorsly
" Wow, glad I found this forum on DS! I can relate, I have midgut intestinal malrotation presenting in adult life and congenital duodenal adhesions. I had surgery 6 years ago at the Cleveland clinic. They performed a Ladd's procedure. I have never fully recovered. When I wake up every morning I am at a pain level 8 until I am able to go to the bathroom sometimes once, other days maybe 3 times before the pain starts subsiding. 3 hours of hell and then a consistent level 4 pain. By evening before bed I am at a level 1. I have 2 loser family members who are drug addicts. I don' t know if they don't believe me, or they are jealous. I will tell you I received private long term disability from the company I worked for, I also receive an adjusted amount of SSDI. What I find ironic is everyone thinks we live on easy street. I wish I could give this shit to them for 2 weeks and watch them cry like little babies while I call them liars! I know that probably sounds terrible, but only 2 weeks! Lol Normal people don't get it! Ted "
gramybear
gramybear
I think many of us wish others could just understand what we are going through each day of our lives and that we have not chosen to feel this way. We can't change how people perceive us, we can only live our lives to the best of our ability and know in our hearts that what we have is real. All I can say is Thank God for DS... Hugs GB
redheaddiva
redheaddiva
I can relate Ted! It always feel terrible *wishing* suffering on anyone but I JUST want those people who are so mean about it to have to deal with it long enough to give them some damn compassion. That's all we want, right? For them to have some compassion and empathy. This isn't a cake walk and I'm sure many of us would glady hand over any medications we take if it meant we didn't have to deal with this crap anymore. I'm not on rx pain meds but, if I were, I know I'd give them back in a HEARTBEAT to have my "old" life back.

Anyhow, unfortunately, like GB said, we can't change them or how they perceive us. We know the truth and I've learned just not to react to those type of people (which is REALLY hard for me 'cause I'm a red-headed Aries). Although I do have my moments, of course, haha.
billwfriend
billwfriend
hugs ted....
cloverset14
cloverset14
I'm so sorry, Ted. (((HUGS!)))
RJRelaxing
RJRelaxing
Hi,
We haven't met yet, so I look forward to getting to know you.

The hard thing is that what you are describing is the "invisible illness". Normal people can not understand when they see you at night in low pain, then in the morning in high pain. Nothing is broken, bleeding, or distorted so to them you could not be sick. Add the stupidity of druggies on top of that, I wouldn't waste my time trying to explain.

We are here to support each other because so many members have invisible illnesses. The sickness is real, but to Normals, if they can not see it, you must be faking. So sorry you have to deal with that crap. l hope you find the support you need here. We have a wonderful group of people.

Hugs-RJ
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