Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
Decibel-Places
My wife has been in traditional pain management for over 30 years. First NSAIDS, then when she couldn't tolerate them after our daughter was born 25 years ago, she switched to opiates and they have worked pretty well, she has not significantly increased the amount until recently when she had broken ribs from a fall.
Then she started to get very sick, her condition deteriorating over the last 1.5 years, with what looks like a moderate case of Stevens Johnson syndrome causing skin lesions and ulcers. I thought they might be from the Tylenol, and now I know her liver was also compromised.
She has frequent migraines and cluster headaches, sometimes multiple times a day, and at age 63, she has aging pains, as well as 3 fractured ribs from a fall in February.
Now she is diagnosed with a rare auto-immune condition that has destroyed most of her liver. Doctors in the hospital say they are afraid to give her any opiates because they might shut down her liver completely.
She has always worried about what she would do if she could not take the opiates, or they stopped working. Now, resuming her pain management routine will kill her.
I massaged her neck and back and cuddled her and she was able to relax, finally. But she is suffering terribly, and the stress has affected her breathing to the point where she is not intubated for the 3rd time in 3 weeks. It must be awful to lie in bed with nothing to do except suffer from pain all over your body, and try to breathe deeper, which also hurts. I brought magazines and books and games, but she barely has the concentration to watch tv.
When I discussed massage with the nurse and doctor, the doctor said "We do not have a massage spa here" and the nurse said she would be worried about loosening a clot in a bed-ridden patient. I also asked about PT, and the doctor said they only give it to ambulatory patients, not bed-ridden ones.
I want to give information about non-prescription pain relief to the resident doctor, he has indicated he is willing to learn about new things. They don't teach that kind of stuff in medical school.
In the past my wife tried bio-feedback and acupuncture with little relief.
I know certain foods, especially spicy ones with capsacin have helped some. My wife likes spicy foods, and has told me she has considered pickled hot cherry peppers an anti-depressant for many years.
The hospital has her on bland pureed foods - when she is not intubated with a feeding tube. I asked the doctor if I can bring some guacamole, but he said she can only have mashed pureed foods (?!)
I have also discussed medical marajiuana with her, but she is skeptical that it would help.
An Indian friend gave me a tulsi plant (Indian basil) and told me there are reports of miraculous recoveries from extracts and teas of tulsi.
Any suggestions would be appreciated, and helpful to the community as well.
Then she started to get very sick, her condition deteriorating over the last 1.5 years, with what looks like a moderate case of Stevens Johnson syndrome causing skin lesions and ulcers. I thought they might be from the Tylenol, and now I know her liver was also compromised.
She has frequent migraines and cluster headaches, sometimes multiple times a day, and at age 63, she has aging pains, as well as 3 fractured ribs from a fall in February.
Now she is diagnosed with a rare auto-immune condition that has destroyed most of her liver. Doctors in the hospital say they are afraid to give her any opiates because they might shut down her liver completely.
She has always worried about what she would do if she could not take the opiates, or they stopped working. Now, resuming her pain management routine will kill her.
I massaged her neck and back and cuddled her and she was able to relax, finally. But she is suffering terribly, and the stress has affected her breathing to the point where she is not intubated for the 3rd time in 3 weeks. It must be awful to lie in bed with nothing to do except suffer from pain all over your body, and try to breathe deeper, which also hurts. I brought magazines and books and games, but she barely has the concentration to watch tv.
When I discussed massage with the nurse and doctor, the doctor said "We do not have a massage spa here" and the nurse said she would be worried about loosening a clot in a bed-ridden patient. I also asked about PT, and the doctor said they only give it to ambulatory patients, not bed-ridden ones.
I want to give information about non-prescription pain relief to the resident doctor, he has indicated he is willing to learn about new things. They don't teach that kind of stuff in medical school.
In the past my wife tried bio-feedback and acupuncture with little relief.
I know certain foods, especially spicy ones with capsacin have helped some. My wife likes spicy foods, and has told me she has considered pickled hot cherry peppers an anti-depressant for many years.
The hospital has her on bland pureed foods - when she is not intubated with a feeding tube. I asked the doctor if I can bring some guacamole, but he said she can only have mashed pureed foods (?!)
I have also discussed medical marajiuana with her, but she is skeptical that it would help.
An Indian friend gave me a tulsi plant (Indian basil) and told me there are reports of miraculous recoveries from extracts and teas of tulsi.
Any suggestions would be appreciated, and helpful to the community as well.
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I'm so sorry this is happening to your wife and you.
With everything that happened, i am not surprised that the doctors are terrified of trying anything that deviates from traditional model of medical treatment.
However, many people i know with serious medical problems greatly benefit from massage, PT and dietary modification. Massage alone can aid in good pain relief for stiff, weak or contracted muscles.
Do you have any naturopaths in your area who would be willing to take on your wife's care once she is out of the hospital?
I am so sorry to hear that your wife is suffering so terribly. I am struggling with terrible chronic back pain and have exhausted all of the traditional medical options over the past 4 years. I have been doing a lot of research lately and the thing I keep finding is a technology called PEMF (pulsed electromagnetic fields).
It turns out that PEMF is not widely known in the USA, but it is widely used in Europe and China, and is accepted as a very effective treatment for chronic pain of all kinds.
I remain skeptical, but I recently discovered that NASA did research on PEMF (they called it TVEMF) back about 15 years ago and discovered that PEMF was very effective at getting stem cells to grow, etc. There are a lot of blogs and forums about PEMF, and one that I found recently was bulletproofexec:
https://www.bulletproofexec.com/73-somapulse-electromagnetism-with-dr-bill-pawluk-podcast/
Right now I am looking for the best reasonably priced PEMF system. All indications are that the somapulse brand (dr. pawluk) is the most effective PEMF system, based on the user feedback in forums and blogs, but I think it costs too much (about $1400.00). BUT, I just discovered another source: allevawave.com. Their price is about half of somapulse and if you join their group they claim they sell exactly the same device as somapulse (described on bodyfields.com and drpawluk.com). I am trying to get ahold of the person who runs the allevawave.com site to get more information on exactly what they sell, their guarantee/warranty, etc.
Anyway, I am committed to figuring this out by doing some self-experimentation with PEMF. I'll let you know how it goes, whether it works or not. Fingers crossed.
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While both are completely legal and are now Schedule III, I have not been able to find a doctor to RX them sadly. They are used for certain types of severe pain.
Maybe this is an option I hope.
Best of luck with all of it and may God Bless You for caring so much for your wife!