Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
I had a horrific kidney stone attack last night, ended up in the ER. They did a CT and said it is 7.5mm and triangular shaped. It's too large to pass. They offered to keep me for pain control but my fear of needles and hospitals won over. They said that I'll definitely need a lithotripsy and sent me home with snit-nausea meds and torridol- the only medication that works for stones for me. They tried Dilaudid but, as I'd told them, only the non-opiiod Torridol works for my stones.
I had 2 very kind docs, but they seem so short-sighted. Both said they'd stay for pain and nausea control if it was them, and last night I wished I had. But the important part- scheduling the lithotripsy could NOT be done!
We'd planned on going home for Xmas on Tuesday. If the hospital had been prepared, they could've arranged for the damned thing to be taken care of today. Instead I'm supposed to phone my Urologist (from same hospital!) Monday morning. This is the worst, most painful stone I've ever had and I've gone from being sure I was dying of pain to being so angry I could spit.
It's as if they don't CARE to make anything easier or at least have it make sense. My Urologist works at the hospital. WHY couldn't they CALL the Urologist on call? I asked about staying, as they'd given me the choice, and if THAT would speed up the decision on how to get rid of this sucker of a stone. Nope. The stay would've been for pain and nausea control only. I would NOT have seen an Urologist.
So now I'm on hour 30 of this awful mess, with no plans for the stone that is SO dangerous, as they explained repeatedly. I've kept the pain manageable for about 10 hours by taking the Torridol and my RSD pain med on regular schedule, plus anti-nausea drug. But The whole thing is just wrong. WHY couldn't they call the urologist on call? Why do doctors sometimes just make NO sense?
I'm in pain and sad and angry. My 5 year old has been looking forward to seeing our family for Christmas. He hasn't seen my Dad in a year. 3 families are going out of their way for us. But now, either way, we won't make it home for Christmas. And I have a good chance of being in the hospital for Christmas, if they don't do something soon.
I hate being self-pitying and angry, but I am. I hate this! I hate living away from all our friends and family. My hubby has to take tomorrow off b/c we have no idea what is going to happen. The ER docs were so uninformed about stuff like this. They were nice guys and wanted me to be comfortable and keep fluids down, but they totally pass the buck when it comes to what will happen to me and when.
I've been in bed for almost 24 hours now and other than a warm bath, I'm dizzy, have a headache and chills off and on, and the worst pain of my life, which is saying a lot. I'm propped up against the laptop with a heating pad on my right flank, and writing this in between spasms. Last night I had such serious pain for over 3 hours that I was certain I would die. I couldn't move and everyone was asleep in other rooms.
How do I make them take me seriously? I just want the damned thing blasted away. A sip of water with pills makes me hurt SO BAD for about 20 minutes that I'm scared to drink anything. The stone is up high, according to the docs and the CT scan, and I feel it low, and all over my right side. This is one of my worst nightmares. I'm terrified of needles and hospitals to the point that I put myself through agony last night. I THINK i have the pain as controlled as possible right now at home, but if it gets as bad as last night, we would have to go back.
Why now? I haven't had a really bad stone in over a year. I had preventative kidney litho in March. It amazes me how it is possible to forget that pain. Maybe I block it out. But this is NOT how this week was supposed to go.
The doc kept saying it's not just the size 7.5 but the odd shape that means it won't pass on its own. I'm just not up to another surgery/procedure and am terrified I won't get MY doc and will get a doc that does stents. I do NOT want a stent. I just want it gone. At least I know how the litho works, although mine was in the kidney.
Ugh- I just don't know. Sorry for the rant. This time of year it's usually the RSD but we've had milder weather. I feel like the Grinch for ruining my family's plans. And I'm SO confused as to the doctor's orders. Call my Urologist Monday. One doc said maybe they'd get it all done by Monday but I KNOW how hard it is to even get the right doc on the phone! And even then it's not a fun recuperation.
I guess I'm just not used to the unknown. Such as- what is the stone doing if it is too big to pass? Does it just hang out in the ureter? Both docs said the odd shape was another reason it was causing such bad pain, but if it escaped the kidney, couldn't it possibly pass without intervention?
Ugh, I'm so tired. So, so tired and so much in pain. I had such great plans for this week and now a stupid stone is ruining it. I feel like a whiny teen ager! Sorry- hope I'm not ruining anyone's Holiday Cheer. I'm just feeling so...ruined.
I had 2 very kind docs, but they seem so short-sighted. Both said they'd stay for pain and nausea control if it was them, and last night I wished I had. But the important part- scheduling the lithotripsy could NOT be done!
We'd planned on going home for Xmas on Tuesday. If the hospital had been prepared, they could've arranged for the damned thing to be taken care of today. Instead I'm supposed to phone my Urologist (from same hospital!) Monday morning. This is the worst, most painful stone I've ever had and I've gone from being sure I was dying of pain to being so angry I could spit.
It's as if they don't CARE to make anything easier or at least have it make sense. My Urologist works at the hospital. WHY couldn't they CALL the Urologist on call? I asked about staying, as they'd given me the choice, and if THAT would speed up the decision on how to get rid of this sucker of a stone. Nope. The stay would've been for pain and nausea control only. I would NOT have seen an Urologist.
So now I'm on hour 30 of this awful mess, with no plans for the stone that is SO dangerous, as they explained repeatedly. I've kept the pain manageable for about 10 hours by taking the Torridol and my RSD pain med on regular schedule, plus anti-nausea drug. But The whole thing is just wrong. WHY couldn't they call the urologist on call? Why do doctors sometimes just make NO sense?
I'm in pain and sad and angry. My 5 year old has been looking forward to seeing our family for Christmas. He hasn't seen my Dad in a year. 3 families are going out of their way for us. But now, either way, we won't make it home for Christmas. And I have a good chance of being in the hospital for Christmas, if they don't do something soon.
I hate being self-pitying and angry, but I am. I hate this! I hate living away from all our friends and family. My hubby has to take tomorrow off b/c we have no idea what is going to happen. The ER docs were so uninformed about stuff like this. They were nice guys and wanted me to be comfortable and keep fluids down, but they totally pass the buck when it comes to what will happen to me and when.
I've been in bed for almost 24 hours now and other than a warm bath, I'm dizzy, have a headache and chills off and on, and the worst pain of my life, which is saying a lot. I'm propped up against the laptop with a heating pad on my right flank, and writing this in between spasms. Last night I had such serious pain for over 3 hours that I was certain I would die. I couldn't move and everyone was asleep in other rooms.
How do I make them take me seriously? I just want the damned thing blasted away. A sip of water with pills makes me hurt SO BAD for about 20 minutes that I'm scared to drink anything. The stone is up high, according to the docs and the CT scan, and I feel it low, and all over my right side. This is one of my worst nightmares. I'm terrified of needles and hospitals to the point that I put myself through agony last night. I THINK i have the pain as controlled as possible right now at home, but if it gets as bad as last night, we would have to go back.
Why now? I haven't had a really bad stone in over a year. I had preventative kidney litho in March. It amazes me how it is possible to forget that pain. Maybe I block it out. But this is NOT how this week was supposed to go.
The doc kept saying it's not just the size 7.5 but the odd shape that means it won't pass on its own. I'm just not up to another surgery/procedure and am terrified I won't get MY doc and will get a doc that does stents. I do NOT want a stent. I just want it gone. At least I know how the litho works, although mine was in the kidney.
Ugh- I just don't know. Sorry for the rant. This time of year it's usually the RSD but we've had milder weather. I feel like the Grinch for ruining my family's plans. And I'm SO confused as to the doctor's orders. Call my Urologist Monday. One doc said maybe they'd get it all done by Monday but I KNOW how hard it is to even get the right doc on the phone! And even then it's not a fun recuperation.
I guess I'm just not used to the unknown. Such as- what is the stone doing if it is too big to pass? Does it just hang out in the ureter? Both docs said the odd shape was another reason it was causing such bad pain, but if it escaped the kidney, couldn't it possibly pass without intervention?
Ugh, I'm so tired. So, so tired and so much in pain. I had such great plans for this week and now a stupid stone is ruining it. I feel like a whiny teen ager! Sorry- hope I'm not ruining anyone's Holiday Cheer. I'm just feeling so...ruined.
About the kidney stones. Hubby had stone problems twice, and was told a lot had to do with being dehydrated after travelling and flying. So he tries to make sure he always drinks lots of water and juices.
The first time, he was in ER and it finally passed. The second time, he had surgery, where they blast it to tiny pieces. It was an overnight stay, which is unusual... hosptials typically send you home the day of surgery. But it was successful, and that was 20 years ago without another problem. I wish the same for you xo
It is.. as I think you said somewhere..
Ultimately not good for your kidneys ( maybe the main reason fo only being supposed to take if for up to five days?)
It's a not steroud anti-inflammatory ( same group as A Eve, Ibuprofen....)
It worked amazingly on several sprains and broken bones I had at once many years ago.
..too bad they can't get the kinks out of the side effects.
Hugs