Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
Wishing you well...
If you need help ask. My dr said to be very careful in asking for accommodations he suggested to put in writing so that your wordage was exact. You don't want to tell too much. My dr helped me word the letter. That way I wasn't putting my job in jeopardy or hurting my chances for disability later on if I couldn't work at some time in the future. I'm scraping buy with the health/ medical balance right now but you never know what the future will bring.
I have taken the full disclosure approach so my boss and folks around me know what is happening. I think sometimes that given a do-over I would take a different approach.
CFS is a nonsense diagnosis. Even if you provide information and people do research they will tend to dismiss your illness. Have you ever heard the phrase 'a little knowledge is dangerous?'. Folks have used bits and pieces of CFS knowledge against me, like the brain fog. Insisting that I am forgetting stuff or not recording things straight, having written records has validated my position on some occasions but it really does not change the overall perception.
I think it does affect long term decisions such as promotion, so if I had to do it over, I would not discuss it.
She brushes aside my concerns indicating that she did the same surgery with no issues. I said "well, you were healthy, I am not" and my boss says
"It seems you are looking for excuses to be sick .. ARE YOU SURE YOU ARE NOT A HYPOCHODRIACH?"
Even today I am still pissed. As I said, the less said about the CFS issue, the better.
Good luck MaxPB keep in touch.