Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
I've been noticing that some of the companions in our community are writers or want to be.
There are lots of reasons why we get interested in writing. I think it can be good therapy for us. My CFS doctor prescribed writing to me as therapy. It has been good, except I go at it a bit too hard. Which is all too often. :)
My two oldest daughters encouraged the blossoming of my interest in writing. They wanted me to write down the stories I made up for them when they were kids. The story, young adult and coming of age, I ended up creating is in a possible universe based on our world. I delve into dealing with limitations we deal with. CFS background helps with this and it is cathartic to write about. Also I write about different cultures and learning to accept others. I talk about wonderful things in our world, blue people, porpoises, snow leopards, blue hyacinth macaws, and the stone forest of Madagascar. There is the horrible bad guy and terrible things that happen, again all too easily modeled after things in our world.
What do you write about, why are you writing, and what got you started?
There are lots of reasons why we get interested in writing. I think it can be good therapy for us. My CFS doctor prescribed writing to me as therapy. It has been good, except I go at it a bit too hard. Which is all too often. :)
My two oldest daughters encouraged the blossoming of my interest in writing. They wanted me to write down the stories I made up for them when they were kids. The story, young adult and coming of age, I ended up creating is in a possible universe based on our world. I delve into dealing with limitations we deal with. CFS background helps with this and it is cathartic to write about. Also I write about different cultures and learning to accept others. I talk about wonderful things in our world, blue people, porpoises, snow leopards, blue hyacinth macaws, and the stone forest of Madagascar. There is the horrible bad guy and terrible things that happen, again all too easily modeled after things in our world.
What do you write about, why are you writing, and what got you started?
When my CFS and fibro get me down, I stop and realize I might never have written anything substantial unless I stopped working. Everything has a reason.
I'm working on turning all my journals from my 19 yrs in an emotionally abusive dominant/submissive relationship into a book. Sort of an anti-50 shades of grey..... I also have some work done on the childhood sexual abuse I suffered at the hands of my brothers and how it was dealt with ( more precisely not dealt with ) in my family. I won't seriously work on that until my mother passes away. I want to write something more cheerful and less angst ridden but feel these thoughts need to get fully down on paper as it were and cleared out before I can do that. Then I'd like to write children's books.
It's a slow process but it's very healing. I'm using Dragon naturally speaking at times to read my journals into the laptop. It's very helpful if clunky....
I'm with Dorothy Parker when she said, "I hate writing, but I love having written."
as my health has severly declined so have my cognitive abilities - especially word finding and information processing. i've lost a lot of my ability to write but i'm not giving up. even the little bit of writing here on this website helps. thank you for talking about this.
BUT, I would like to thank everyone who DOES write! You can tell when you're reading things here, that someone should be putting their thoughts on the pages of a book!!
I hope that everyone who does write, continues to do so, no matter how long one project takes. I hope that people who "wish" they could "just do it" will try. Writing is a gift. If you have it, I wish you the very best at being able to use it!!
Recently i started working on something totally different, the lead character ruthlessly murders sexual predators, she's dead (undead?) and is not shackled by such things as conscience. This novel will be my tribute to cfs.. because of my sound sensitivity i tend to watch a particular channel a lot because it has soothing soundtracks. It does focus though on murder, betrayal etc. so thats where the germ of this story was planted, but i think my experience with these doctors and others who would seek to take advantage because i'm less able to stand up for myself .. My cfs experiences nourish that little seed, so this story is sprining up strong and true. I really think i can have it completed this year.
This is a great thread, its nice to explore share interests, and even those who never dreamed of being a writier can benefit too. Just putting it all down in one form or another can really help ... Happy writing.
I started mostly writing poetry as a form of therapy for the things life has thrown my way. Now I write everything Poetry, Non fiction, Creative Non Fiction, Fiction Novels, Short Stories. I've self published a couple of things and am always working on my other writing projects when I have the time.
My dream job would be someone paying me to write. So I keep dreaming this will one day be the case.