When my D levels drop my rheumy puts me on high dosage of D to get me back up to par............I have quite a few conditions going on, so do I think that restoring the vitamin D in my body helped.......yes I do, but it didn't seem to really change my fatigue or brain fog levels per se.............how to make sense with brain fog this thick?

D was just one more thing, but not the answer to restoring me back to brain fog or pain free me...........I still have a lot going on and believe I always will............sigh, sorry I want to be helpful to you.......but my brain in not in sense making mode compliance........can i just give you a hug, say i'm sorry you're going through all of this and hope you can finds more answers in time than questions.........it's a journey and it all needs to be in care of you.......take care !

Vitamin D is vitally important to us!! If you are deficient, your doctor is wise to supplement you till you fall into the normal range. Once you reach normal.....you can reduce the dosage to keep it that way.

Some places in this world are lacking sunshine and all those folks are deficient in Vit. D. Not good. They supplement.

We are (I am anyway) often heat intolerant and don't go in the sun much, so I have my levels checked twice a year. I have enough D, so I don't need to supplement!

Yes, even with proper Vit.D in my body, I still have bad brain fog! So the proper level of that vitamin isn't the answer to the whole question of brain fog....but getting it into a normal range, may well help you clear up your mind a bit!!

Also get your Vit. B-12 folate checked. That's another little bugger than we can fall deficient in and "fog up". We really have to stay on the ball with this illness. If only we were up to it.......!!

Brain fog has been a problem for years with me. My family doc tested my vitamin D levels and they were very low. I believe around 5 or so.
My doc wanted me to take around 1000 iu per day but i had to tell him that a dose as small as100 iu would make me feel very agitated and my system just did not seem to accept it. As far as I know, that kind of experience is quite rare.

I tested very low as well. They put me on 50,000 IU 1x weekly for 6 months and I'm still not in the normal range.

I take a OTC supplement every day now. It hasn't made any difference in my fog or fatigue.

I found Vitamin D helpful with fatigue and began taking extra when my fatigue worsened, for a while between 10,000 and 20,000 iu a day. This was too much, as my blood tested above normal. My doctor now has me taking 2,000 iu twice a day.

All the best with your course of treatment!

I have been diagnosed with several illnesses which I believe chronic fatigue is just another symptom of. However, my Vit D level was tested very low (was an 18 where it says on my blood test results that 30-80 is normal). My MD put me on 10,000 IUs of Vit D3 per day for 60 days and then 5000 IUs for another 60 days or so thereafter.

The vitamin D has made no discernable difference in how I feel. No increase in energy or improvement in my neurological symptoms. However, the script meds or supplements I have been taking (antibiotic, antifungal, antiviral and many supplements) have not seemed to help either. Ironically, the only thing that noticeable helped me was taking "Mucinex D" on my own as my lungs and sinuses were so congested.

I just saw a blood test request by an NP in my MDs office in my med files that I keep where she wanted another blood test done 30 days after I started the 10,000 IUs back on 1/31/13 to recheck my Vit D but I was never told to do that. I saw her back on 1/30/13. I saw my MD on 4/3/13 and he said nothing about having my Vit D checked again and just told me to continue on that 5000 IUs/day.

I think the little med clinic where I go is so busy, that I often see small errors written on my medical records which I keep copies of. MDs, NPs and PAs all seem overworked down there and apparently do not communicate with each other about each patient that they all see/treat. That makes me feel less confident about that place.

Interesting that two of you posters were told to take high doses of Vit D once a week where I was told to take a high dose (10,000 IUs) every day. Makes me wonder what is going on and what is the correct procedure?

my vitamin D is 23 and my doc just told me to take 2000iui per day oer the counter... so I have done that for almost 2 years now and it's not any better.

Yes it does help greatly but it needs to be maintained. As for me I never go in the sun as my scars burn very easily so I have to have Vit D tablets. I also find B12 injections help with my brain fog but I need them every fortnight which is expensive and I have a bad reaction for the first 24 hours due to the high dose of it.

I just get out and garden. It helps on so many levels.
No amount of fatigue or heat rash can stop me...

"The vitamin D has made no discernable difference in how I feel. No increase in energy or improvement in my neurological symptoms".

Ditto for me.

Mood, however, improves greatly when I get gentle exercise and sunshine outdoors. Vit D supplements, on the other hand. do not help me with mood, energy or brain fog. I just take them during the winter because I live on the Canadian Prairie and am locked indoors...

The first time my primary care physician checked my vitamin D levels, they were 18. I was told to take 2,000IU of Vitamin D3 everyday. I went to see a rheumatologist who prescibed me 50,000IU once a day for 6 weeks. Did another test 3 months after the first time I checked my Vitamin D levels. It was still at 18.

Personally, I didn't feel any effects from taking Vitamin D. Probably because my levels didn't go up at all. After we found out that my levels didn't go up, my rheumatologist put me back on 50,000IU twice a week for 8 weeks. I'm still in the process of completing this but I honestly haven't been following the directions on taking it because I feel like every time I take vitamin D supplements, I get extremely sleepy and I have to go to sleep or I won't get anything done....does anyone else get sleepy/tired after taking their vitamin D supplement?

I had blood work done this week, the Nurse called me and said I have Vitamin D deficiency. I am Very nervous and cannot sit still. Lot of Energy

Janic321!

Many people cannot tolerate VIt D supplements. In my daugher's case(she is deficient in Vit D and has lupus).....she tried to take it and became very anxious and nauseous. Her doctor told her to stop.

I was put on Vit D3 for a trial run before my CFS diagnosis and I wasn't able to take it either. I became nauseous and lightheaded.

My CFS specialist told me that MANY people are unable to supplement VIt. D. Like any other supplement, each person's reaction is different. It's better to try your best to get 10 minutes of sunlight when you can. Do not think that it's uncommon to have a bad reaction to this supplement. Please tell your doctor and see what he/she recommends! Hope you feel better!!

My daughter results just come back hers is 6.6 when should be 60 - 80 so being put back on meds for it will know thursday what does she is on