I have the itching in the same places too. I have sweat running down my face regularly and i recently broke a tooth (despite being almost 47 without any problems at all - no fillings etc) Ive just had to get new glasses too - I didn't think these things were related to the CFS but maybe they are I just put it down to my age .

Yeah, I have sweating from the neck up, as well. I have itching in various places. My eyes also go wonky. I often struggle to understand what people are saying. I hear the sounds, but they don't make sense to me. My joints slide in and out of place. I could go on, but I'm too tired. Love you all. Smiles.

Reading that comprehensive list is just about enough to frighten the life out of a person. I'm not quite convinced that all of the things listed are symptoms of or caused by CFS.

Having said that, I have noticed over the last couple of years that I do have trouble with facial recognition. Not with people I already know though. I notice it most when watching a TV show or movie because I sometimes have trouble telling characters of the same gender apart. That can make it hard to follow the story.

I find myself short of breath, almost panting at times, from the lightest exertion, or occasionally for no reason at all.

It never even occurred to me that the ridges on my nails or the tooth I broke recently might have anything to do with CFS.

There are a number of other things that match but I don't have the energy to go into them.

Check on all those symptoms. I just broke another tooth this evening while having soup. My dentist tries to blame me because I eat natural foods...but soup?

My ears itch like nothing a normal person can even imagine. If I swab them with a Q-tip, it feels incredibly good. But then later I get earaches. I know I shouldn't swab them, but sometimes I just have to do it, you know?

I remember the eye doctor getting mad at me because I said all his test lenses looked blurry to me. He's a CFS denier, eventually I had to go to another doctor to get away from him.

I try not to catalogue my symptoms...that tends to make me feel really depressed. But trust me on this, I have a LOT of symptoms.

Not so much the itching, but oy the eyes... my rx seems to change daily. At this point instead of buying contacts with rx I buy clear ones to help with UV and have 4 different pairs of rx glasses I got cheap online in the car to try when I have to drive...bizarre. My eye doc doesn't know what to do with me either so I just make do.
I have only about 1/2 my teeth left. The ones I have are all in the front so as they break I will let the insurance cover 1/2 and get caps. I tried a partial and can't manage a plate, makes me gag all day long. So I smile with my mouth shut and chew on one side. Implants? forget it, you need a mortgage for them!
Oddly I broke a tooth this week as well. DDS appt on Wednesday. I was eating a chewy calcium supplement. It yanked out my filling and part of the tooth came with it..
Does anyone wonder if perhaps we just don't get the right nutrients for our teeth? Since I've been using the flouride brush on rx stuff they gave me I've only had one tooth break in 4 yrs. Maybe we just need some extra help?

You know, CFS disregulates our whole & entire nervous system. So it makes sense that we can have such a lot of diverse symptoms. I read somewhere that many of these symptoms (like breaking teeth) aren't obvious how they are part of CFS, but it happens in our population significantly more than the healthy population.

I find that knowing about all these symptoms is so reassuring. I often question if I am such a hypochondriac (as my family has told me for years) or I feel crazy, or lazy that I can't get up and do things. Knowing that these are actually all real symptoms allows me to be nicer to myself.

Richie D re: itching I too use a q-tip in my ears, and, omg, it is SO good. I also read with interest your comments about itching possibly being caused by our modern laundry detergent and washing machines. I am going to make a change and see if it helps. Thanks for the tip.

Had to give up make-up! such a sacrifice. Sweating, all the time, whole face and neck, all my chins......it's messy and embarrassing. I'm asked by drs. if I have a fever? However, I know it's good for the skin and we will wrinkle less.

It helps me to read the symptoms, like eyes losing focus. and not recognizing character's faces, and losing my ability to spell. It's good not to be alone. Love this group, abby

I sweat a lot too, very uncomfortable thing to deal with. Dental problems here as well. My eyes have a difficult time focusing to read. I end up reading out loud to myself so I can try to comprehend what's in an article or book. Dealing with mouth sores right now, how exciting. Thanks for the links to the articles, they explained many of the other symptoms I'm dealing with. Wishing you strength to deal with all of this.

It is so interesting to me that you also experience shortness of breath CMIAT. When I am really bad everything makes me short of breath. I know it is not because I am out of shape because when I first came down with cfs I was forcing myself to exercise regularly and I was still short of breath. I have had the cardiac tests and everything is negative for heart issues. When I told my current doctor(she is awesome) I was short of breath she said that chronic fatigue seems to effects all systems of the body so my symptoms didnt surprise her.
I also have the problem where it seems like my eye prescription is changing daily, and I itch daily. I am super sensitive to noise, and bright lights. And my joints are always popping and cracking (and painful). As always it is nice to know I am not the only one experiencing this. Blessings to all.

Even when I'm just doing light work around the garden, I often have to stop and catch my breath. I exercise regularly, but it doesn't seem to have any bearing on the shortness of breath issue.

When I stop to have a drink of water, I have to wait until I get my breath back or I tend to choke on the water. Just walking around slowly seems to take my breath away.

Oh my gosh...thank you Lindasch100 for opening this thread and posting those links. Shortness of breath, fatigue, and intolerance to heat and cold are my most prominent symptoms and they are almost always present. On bad days, I experience a combination of most of the other symptoms. I had not made a connection between CFS and my recently broken tooth. And I was becoming very irritated with my new glasses, wondering why they seem to improve my vision only some of the time and often seem fogged over. As a side note, my recent eye exam revealed a "macular wrinkle" - whatever that is. The doctor said we should, "keep an eye on it."

I am glad we can share our odd symptoms here - I am sure mine sound crazy to the healthy people I interact with. I don't sweat excessively, but I wish I would - I am so overcome from the slightest increase
in temperature that I flush bright red and feel very weird. I think if I broke out in a sweat I might feel cooler. Only I don't really feel hot - but my body apparently does. I recently cracked a tooth - which was odd, because my teeth are usually the only healthy thing about me!

I have also experienced a lot of shortness of breath. Facial recognition - I can hardly keep track of characters in movies or tv shows unless they have a very distinctive feature or vastly different hair color from one another. And even then, I usually forget by the next scene. And I am having to read anything slightly difficult aloud - definitely not how I lived before I got sick.

Not recognizing faces...that one has gotten me in sooo much trouble. I've noticed that if a woman changes her hair color, I simply don't recognize her at all.

When I still had my business, a client's wife dyed her hair. I could NOT recognize her...thought it might be her, but what if I'm wrong? So I just avoided saying anything at all. I think she was offended.

You can't explain these things to people...they just think you're putting them on or you're going crazy. I never tell anyone but medical people that I have ME/CFS anymore. It seems to work much better that way.

They just think I'm on drugs, and they treat me better...LOL. I guess there are so many people on drugs in my area of the country that it's something they accept in people.

Yes, yes, Morebooks. I am like you with the under active sweat glands. My face is always flushed. After exertion I sometimes get a prickly feeling on my skin like I am just about to start sweating, and I feel almost nauseous. You know the old saying, " Horses sweat, men perspire, and women glow." Well, I "glow" bright red. lol.

I wonder if the reason why some people have problems understanding this disease is because almost everyone has experienced a few of our symptoms at some point in time. Everyone has had muscle cramps, everyone forgets things occasionally, and most people have experienced exhaustion a time or two. Therefore, they probably believe they have an accurate frame of reference. They can't comprehend that our similar symptoms are much more severe, often occur simultaneously, and they NEVER GO AWAY.

Good Gravy, people!
I feel so much better reading this - I haven't been on for some time, as I always fall behind in work, and fall on my face on the sofa when I get home. The itching! the teeth breaking! the reading comprehension! the changing vision! Also have burning patches on my skin where the slightest touch hurts and irritates like mad.
Have been sweating ever since I got this dumb disease - and shortness of breath was my first clue that something was really wrong (in addition to Fibro which I thought I had mastered). codn't climb stairs at work or go for walks. I was sick in bed for weeks (6) and then dragged my butt up and back to work. This was in 06. Had active Epstein Barr an several other viruses and mycoplasmas. Whee! let the wild adventure begin.

I need a sugar daddy to help me get my teeth fixed as they have been crumbling since 06 - but then again - I
have neither the energy nor desire to date - just too dang tired. So that's out. lol

I don't have problem with faces, (no - that's not entirely true - I sometimes don't recognise people form the past - I know I should but I dont - then later I do as if the not recognizing had never happened at all. but I do completely blank out on situations from the past - ie at a gathering of high school best friends I had no memory of a trip to the mountains we had all taken that was a dear memory to all the others - I could remember two scenes - but that took me some time to locate even those. Seeing pictures and wondering why I remember none of it!

I am writing this with my tri focals on top of my head because I simply cant see close up thru them today - had one doc suggest multiple pairs in different rxs - smart guy. too expensive.

Aww, I sure wish you all the best. I truly believe in the next 10 years we will be getting new treatments that will give us our lives back. Have recently started a bucket list for my 60's (I am 55 now with severe exercise/stress intolerqance - my worst symptom).

Love and blessings to all.
Elaine