I just got some of my test results back from my specialist and also had the follow-up appointment.
I had extensive EBV testing, with the results coming back extremely high. Anything over 22 was considered "high" and my number was 476! The specialist said it was extremely high, not normal for just an exposure to mono. All of my symptoms started with a horrible case of mono over 12 years ago.
My vasopression was also not even detectable, which influences the fluid levels in the body. This could be the cause of my POTS. The EBV can actually influence the vasopression.
I need to retest for a specific Natural Killer Cells test.
I got some new information, which will hopefully lead to new treatment... I'll try to keep you posted!
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