Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
As it happens, you and I have one particular thing in common - I live in Adelaide too. I am only aware of one other Aussie on the site and she lives in Queensland.
I hope you get as much from the support and understanding of the wonderful people who share here as I have.
This is a wonderful site to be on!! I've been here since the onset of CFS/ME for eight years! I have learned more from these dear fellow sufferers, than from any doctor.
Please visit the site, often, and regularly! You will make some fabulous friends! xo
Nobody understands CFS better than one dealing with it daily...
Happy we have three Aussies now
Peace & Healing
I'm learning to live within a realistic energy envelope. Takes some ingenuity. Traveling is something I wish I had done more of before I became ill. So many interesting places to go. I'd love a cruise on the Rhine. I've heard it's very doable because you don't need to go to shore and can stay in a nice room or on the deck. Sigh.
You have found the kindest, most caring, loving and supportive group of people that I have ever found. We all live with this damned illness every day, know what fatigue and brain fog REALLY are, and most likely share many of the same concurrent illnesses and complications.
The girls are right, every one of them. We GET ME/CFS; no need to explain what life is like for us like there is with normals. And among ourselves, we have more applicable knowledge than any team of doctors.
Some of us use the journal application. You can set rudimentary privacy levels - public, just friends (be sure to send friend requests!); you can set goals, share what you want or keep individual entries private just to yourself.
I can't praise D-ribose, recommended by Dr. Jacob Teitelbaum (author Fatigued to Fantastic), enough. It is the only supplement I have ever found that I and my wife agree really DOES HELP. I use that daily and try to live within my energy envelope. I take proactive rests and STOP and rest AS SOON AS I realize I'm starting to fade. I try to get out to walk at least every other day if I can, even if only 10 steps down the driveway (or 3) and back. Fresh air and sunshine are good!
These things work for me. I hope you find many close friends here, more helpful ideas to improve your Quality of Life (QoL), and much love and support it's here, like a smorgasbord; if you leave hungry, it's your own fault.
Welcome, Brother.
Jackson
And I am aware guys can do housework. The best part of CFS is my husband now does the cooking most nights Yeah!