I'm so sorry that you are going through this and also that you are going through it alone.
That's not very kind of your Mother, she obviously has NO idea what this illness is like. We here know and we know how bad it feels!
Hang in there! Only one way to go from down!
Hugs and kindness!

I understand what you are feeling. Often we don't get the validation and support we so much need. They just don't understand ... they've never been through it. I hope you are feeling better and doing something you enjoy tonight. I've been watching Frasier on Netflix and I find it is one of the few things that improves my mood these days. So, I don't feel at all guilty about watching as many as I want. : )

Hang in there. this too shall pass. Until then, know that some of us do get it!

Hi Gabriel!

We all know what kind of sick you are talking about because we have the illness! Your mother doesn't "get it". Lots of people don't! It doesn't mean she doesn't love you.

I'm so sorry you're so down. I'm up from a two month crash for about a month now. I really needed to feel better for a while. Sometimes, it seems that when we reach the point that we just can't take it anymore....it eases up on us. Maybe you are there right now!!!

Praying that you know you are validated and appreciated here by your friends on DS. We get it!!! Hang in there. Remember, we always get back up. Hang on...it's comin!!!

Big hugs!

Hi Gabriel,

I'm so sorry you're having a bad crash and that those closest to you lack understanding. It does make it harder to get better when you have negativity directed at you.

I understand exactly how you feel. You deserve understanding, compassion and kindness. You give mine to you. I wish there were other ways for us all to help each other besides just words. But at least we have that, we have so many other people just like us, who know exactly what we're going through, and who care that we are suffering. So many of us who can commiserate fully and not say hurtful things out of ignorance.

You are not alone, and your suffering is very real and very profound. I hope you are able to get the physical and emotional rest you need, the support you need, or at the very least, the space, time, and peace to allow yourself the chance to feel better.

It will get better! Patience, and time, and a positive attitude really help.

Hugs!

Boy, do I understand where you are coming from. I am just coming out of a 3 month crash & it is hard for others, who don't have this illness, to really get how we feel. That's why we all come here to a place where we can be heard & understood. I am sorry your Mom told you what she did, I am sure she would act differently if she could live one day in your shoes.

I hope your illness lets up & you get some better days soon. I live for the good days & try to just pamper myself on the bad. Stay as stress free as you can & just go with the flow. Hard life to live isn't it but we can still have a good life. Hugs going your way, Denise

You are dealing with something that most other people don't understand. However, you've come to the right place to get understanding. We understand. Anything chronic takes a toll on people. Dealing with something short term would be easier. Please try to fine the beauty and joy in the every day events and things you might observe outside your window.

I just experienced an extremely bad episode myself, and I live alone too. I had really bad gastrointestinal symptoms along with a very severe headache.

In all honesty, it did feel like I might be dying. But I've had these attacks before, so I just hung in there and I'm feeling better now, more or less. It can be very scary when you get that sick while living alone, and you have no one to whom you can turn.

I used to go to the emergency room, but they charged me thousands of dollars and said there was no indication that anything was wrong with me. So now I just do my best to get through these things. Trouble is, maybe some day I really will be dying and I won't seek help.

So you have my support, because I know how bad things can get.

I'm sorry to hear you are so ill. It's disheartening when family won't acknowledge our struggle. I can relate. If I say to my mother I am tired, she says she is too. Headaches, her too! On and on. I can only vent to others who have this. They are the only ones to understand. I hope you feel a bit better soon.

So sorry to hear that you are not doing very well today. I am not either, however, I try to do things that I enjoy and that make me feel better when I am down. I try to get a little fresh air, go to a park, I have a camera and I will take photos of anything that I find interesting or pleasant to watch. Last year it was ducks and Canada Geese. I took hundreds of photos. Went through them and printed a few favorites, framed them and hung them on my walls. Year before last it was flowers. I did the same thing. Then I can log onto my computer and look at them when ever I want. Nothing like flowers and babies to lift the spirits. I am going to load a couple for you in my profile today. Be good to yourself.

I'm sorry to hear you are alone and struggling. I know from my own crashes that sometimes it feels like we are dying - unless someone has gone through the same thing, they just can't understand. My mother suffered from chronic illness herself, and yet had no sympathy for me at all - thankfully others have been kind to me, and my friends on DS have changed my life through the support they've given me. Please keep us updated on how you are doing.

Sorry to hear about your crash and your mother's lack of understanding. I know how you feel as I too live alone. I had a bad crash a few months ago and felt like I was drowning, that I couldn't live like this anymore. It's hard to believe but it does get better. Find something that you can enjoy. I watch movies and tv shows. Be kind and gentle with yourself. It will get better!! Hang it there. We are all here for you.

For me , talking on the phone and going out can be such an effort and people think that because you are out and you look fine all is well. I'm realizing that most people don't get it unless they themselves have been there and I shouldn't expect anything. I'm so sorry it's your mom who isn't being kind. That's what we are here for, Gabriel. Loving , kind thoughts and prayers coming your way. Isabelle1954