Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
Hi,
I have more lint & dust in my pockets, than I do brain cells. Found my stamps on Monday. Needed them on Wednesday ---- no idea where they are.
Put a paint brush in the top rack of the dishwasher. Nothing else just the paintbrush. Decided to lock the painting project up tight in the garage until further notice.
For the first time in weeks my feet weren't cold. Had skidproof socks on. At some point stuck my sock covered feet in slippers. Double layer warmed my feet. Don't remember doing this, glad I did. I have a drawer full of socks.....never occurred to me in weeks to double up the layers.
Cooked dinner and forgot it was ready to eat. Remembered when I got the shakes.
Had an energy burst, did paperwork & stopped, "don't overdo, pace yourself". Filing can wait for another day. The next two days my body/spirits nosedived......overdid it AGAIN and had to go through the PEM payback program.
Listened to a comic. He said you know you're getting old when you hurt yourself sleeping. Thought that joke should represent us.
Put my sweats on backwards.......having the much bigger backside on the front brought some much needed laughter. Glad this was confined to a home viewing of me, myself & I.
Another night I ate in front of the TV....looked down....Reeses pieces on my rice......really? (yeah, I tried a bite, not a good combo....LOL). Don't remember putting them on the rice......help me.
Squeezed hand lotion on my toothbrush......nose caught it last second. Cranberry spice lotion vs. minty paste.....close call.
Happy that I could read this week, I picked up my novel......got to the last 50 pages and knew I had not only read it before, I now have two copies of this book. Luckily I could not remember the ending, so despite the extra $$$, it was still a good read. Don't know the title or author......sigh.
I'm not smart enough to be sick.......I think I need a hug......take care all.
I have more lint & dust in my pockets, than I do brain cells. Found my stamps on Monday. Needed them on Wednesday ---- no idea where they are.
Put a paint brush in the top rack of the dishwasher. Nothing else just the paintbrush. Decided to lock the painting project up tight in the garage until further notice.
For the first time in weeks my feet weren't cold. Had skidproof socks on. At some point stuck my sock covered feet in slippers. Double layer warmed my feet. Don't remember doing this, glad I did. I have a drawer full of socks.....never occurred to me in weeks to double up the layers.
Cooked dinner and forgot it was ready to eat. Remembered when I got the shakes.
Had an energy burst, did paperwork & stopped, "don't overdo, pace yourself". Filing can wait for another day. The next two days my body/spirits nosedived......overdid it AGAIN and had to go through the PEM payback program.
Listened to a comic. He said you know you're getting old when you hurt yourself sleeping. Thought that joke should represent us.
Put my sweats on backwards.......having the much bigger backside on the front brought some much needed laughter. Glad this was confined to a home viewing of me, myself & I.
Another night I ate in front of the TV....looked down....Reeses pieces on my rice......really? (yeah, I tried a bite, not a good combo....LOL). Don't remember putting them on the rice......help me.
Squeezed hand lotion on my toothbrush......nose caught it last second. Cranberry spice lotion vs. minty paste.....close call.
Happy that I could read this week, I picked up my novel......got to the last 50 pages and knew I had not only read it before, I now have two copies of this book. Luckily I could not remember the ending, so despite the extra $$$, it was still a good read. Don't know the title or author......sigh.
I'm not smart enough to be sick.......I think I need a hug......take care all.
This stuff would be almost comical if I didn't know that our brains malfunction on us in dangerous ways and we need more than hugs to help us!
Last month I put my saran wrapped dinner in the bread drawer instead of the refridgerator. Looked all over for it. My husband found it for me and told me what I had done. I had no recollection of going anywhere near the bread drawer. Once he told me this, I began to wonder if maybe I shouldn't be in the kitchen at all!! Am I too confused at times to be near an open flame??? Maybe I do hurt myself in my sleep! I've woken up wondering how I may have bruised myself during the night hours. Thing is, we forget. That's why you could read that book...you didn't remember that you already did. This is scary stuff.
Yes, you need a hug. Here ((((Serce))). And, and...now listen....I often find that when I do thing after thing where brain is not present, I usually have to sloooowww waaaay down. I mean my whole life. I am doing to much, and my brain can't keep up with my ambition, but it tries, and then I make these kinds of mistakes.
Please don't think you're losing it. You're a smart woman. I want to comfort you. But I want to warn you too, that PEM is killer! It messes with our heads in very bad ways and I hope that instead of just being scared about what's happening, you can sit down. Stay down. Rest, rest, rest...until you feel that you're firing on all four cylinders!!
God bless ya!! You need to rest.
When I fix things around the house, I forget how to do things, forget where the tools are, forget what I did the last time I patched leaky pipes inside the wall in the utility room.
Sometimes I feel like a teenager who is learning things for the first time...over and over again...except of course for feeling like I'm a hundred years old.
People ask me what my symptoms are...and I can't even remember that. So I don't talk about it anymore...I just tell them I'm sick and change the subject. They really don't want to know anyway.
When my head clears, I write detailed instructions for the foggy me in my notebook. I write fast, never know when the fog might roll back in.
I wish I could remember all the dumb things I did this week but I can't even remember what I came in this room for, I know it wasn't to sit at the computer. LOL I think it was to remember to eat something. It's really dangerous for me to cook and be on the computer at the same time. I can sit right next to the timer and not hear it go off.
PS - I have doubles of most of my books too!
Hugs
So it's true, chronic illness really can be a learning experience...lol. If I ever need to know how to make charcoal, I'll know exactly how to do it.
I have no IDEA what kind of excuse I made to my husband for doin that one!
Of late, I put pepper instead of cinnamon in my oatmeal cookies!
i am in a state now where I cant speak,too much effort to open my mouth,really too much to think..im so fatigued.I cant move,thank God for this laptop and my bed...the bathroom is close by and I can hold on to the dresser to get in there.
i cant work,i am looking into disability and hoping I can get some help with that.
but i repeat..i guess..i so relate tp yall.