It is important to know that each person is different. Try to get a good doctor who will work with you, trust you, so you can request treatments. I have been sick well over 30 years and there are some things that have worked for me.
Acceptance and a quiet life is first. I had to give up so many things and it was hard, but striving for stability and fewer ups-and-downs is so helpful.
I also take a perscribed amphetamine, for the last 15 yrs. most people here don't take that and I often see posts that advise no stimulants. Without it I would be bedridden. We are all different.
I started eating differently; a paleo diet: high protein, lots of vegetables, NO sugar or simple carbs. I have felt better w this. I craved sugar/carbs and found they are poison to me. Put me right into a relapse.
I also take potassium. Research has shown we are very low. It helps.
I educate myself on the internet. Hard to read the articles but I spend days getting though them. For example I have had a lot of trouble w itching the last 2 yrs. Itching that never goes away, woke me up at night and lasted for months. With the internet I found a recommendation for Tumeric, yes the spice! Lots a actual medical research on it lately. I tried it and IT WORKED!
Lastly, be kind to yourself. It can be tempting to get angry at yourself. Try not to. You, and your body, are doing the best you can. Be good to yourself.

I am new to this group, but love it already. I have struggled with this for over 20 years. Along the road I have found many things that have helped, but I think most have been mentioned. I started a relaxing bedtime routine years ago that has helped me sleep better - which makes a world of difference. I eat clean with a huge emphasis on vegetables. I got caffein out of my diet years ago which was really hard, but helped my heart. I got sugar out of my diet 5 years ago (also really hard), but worth it. I discovered a food allergy and eliminated that food. CBT helped me reduce my mental stress. I found Tai Chi to be extremely helpful. There have also been many supplements along the way. oh, the last thing I tried was related to the methylation cycle - taking supplements to try and get it going again. After 2 months taking the supplements, I felt much stronger and more resiliant than I had in years. But the most help has come from relying on a loving God to help me, and I firmly believe He has. I am still struggling with grieving the loss of who I thought I would be. I guess I always thought I would "get better," but after 20 years I'm finally ready to try and accept that this is my life. Many thanks to all of you that have shared.