Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
You will need to get together your complete med history, including meds, tests, DXs, doc names, addresses, phone and fax numbers - along with a timeline of your work places, start and end dates, reasons you left or were let go, hours, end of year paperwork.
The more prepared you are the better chance you have. You might also do up a personal essay stating how your illness(s) affect you, one by one and then cumulative. I know this seems like a lot but really it's necessary to get ssdi to be your own advocate, especially at age 30. Here is a terrific book that will help as well. http://www.amazon.com/gp/product/B0024CF06Q?redirect=true&ref_=docs-os-doi_0
If it doesn't seem like disability is in the cards, then perhaps working from home? there are companies like Leapforce that are real honest to gosh jobs (I have a relative who has worked for them, making her own hours, for 5 yrs)
Re: guns - I don't believe there are any laws prohibiting people from having guns in the house if someone else in the house is depressed, only if the gun owner is.. if that... if you felt you might be a problem for some reason to me the answer is pretty straightforward. Have hubby lock them up tight in a gun safe(if they aren't already), and not tell you the key code or where the key is...in case someday someone needs to get into it he could give a key to a trusted relative.....now I don't know guns but this seems like it would work?
Ultimately it's your decision whether to fight the SSDI fight or try to find work you can do from home or that you are comfortable with otherwise...wishing you peace
Nina
I am wondering about a few things. And if you have already considered them - delete this!
First - what can you do around home to make $$? Can you do an at home job of some sort or train for one?
What about (I do this) gardening and canning/freezing/drying food stuff. Once everything is in, it is cost effective - especially fruit trees (do not know where you live..)
Sounds like you are an introvert (you get "energy" by doing things alone or with very close friends). It is not something to get depressed about. My husband is - he works from home (he is a geek ;-)
If you have been diagnosed with Asperger's - it makes total sense that you are uncomfortable around other people.
I agree with Nina - getting disability for anxiety or depression is VERY difficult - but not so bad with CFS..
Sounds like there is a LOT going on for you (in terms of mental and physical issues). So I also agree w/triunfadora - it takes some work, but work on knowing your true worth as a human being!
Lordy! If I have to know every single job I ever had I could be working on that for a year.
Aspergers isn't fixable. Wouldn't want it "fixed" even if it were. I've tried many things to get rid of my anxiety. Been on so many different meds my doctor throws her hands in the air. She, I think is ready to send me to someone else since she doesn't know what to do.
I would love to can, but don't have the money to start up. I have gotten jars in hopes of coming across a pressure cooker for free or very cheap. I want to grow fruit trees, but kill garden type stuff that are supposedly impossible to kill. If I could work from home it would be great, but usually it involves having money to start. I don't have an adequate computer. For example I have an android tablet and that usually won't work with what programming you need to work on a computer from home. I'm probably going to just talk to my husband tonight about trying to find a lawyer to get disability. I would be unhappy with knowing I have to do it, but I would feel better than not being able to contribute.
I'm struggling too, trying to grow my own produce in what used to be the front lawn...and living on a small monthly check from Social Security.
As for working, have you thought about medical transcriptionist? It would involve working from home, not interacting with people, and you could work at your own pace. I am not sure if your energy is high enough to do this, but just an idea. I think it pays relatively well.
I hope you start to feel better soon.
I dealt w/ADD & CFS for many years by working as a temporary worker. The varied job assignments helped w/ADHD issues & the down times between assignment let me rest until the CFS got so bad I could no longer work outside the home. Currently I am so exhausted I am not good for much but I have visions of creating an EBay business or Etsy shoppe when & if this relapse runs its course.
I am wondering if working w/animals such as a kennel or pet sitting or grooming would be a nice work environment for you. Those jobs don't usually pay that great but I find animals are much less stressful to be around than people. Yet you are still bringing in income. I wish you the best of luck whatever you choose to do
Not once during the application process did they ask me to provide additional information about the migraines. They saw I was non-functional for at least 15 days every month and denied me anyway, because I hadn't fully proven my mental illnesses to them. They sent me to two different psychiatrists to be evaluated. Both of them said, "Hey, you also have PTSD in addition to all the rest of this stuff," but still recommended that I be denied.
After three years total, I finally got a hearing with a judge. My attorney - bless the man - walked in with a chip on his shoulder and told the judge in no uncertain terms that there was no way in hell I was going back to work anytime soon. The judge agreed.
So, to start with, I would make sure that when you apply, the CFS is front and center and any contributing mental illnesses are just background noise. You'll have to put it all in there if it contributes to you being unable to work, but if you can do it honestly, make sure the CFS takes top billing.
Second, get an attorney. You don't pay a disability attorney up front. They get paid only if and when you get your disability allowance. Then, they're allowed to take 25% of your awarded back pay or $6,000, whichever is smaller. This means that when you do get awarded, you're guaranteed some back pay that can go towards catching up on bills. The down side to being on SSDI is that the money sucks. I bring in half of what I was making when I worked. It's not enough to make ends meet, so I have to work a little here and there to pad my income. Social Security allows for this, with very strict conditions.
Lastly, when your husband goes to buy a gun, they'll run the background check on him and him only. You being diagnosed with mental illnesses won't get in the way of him buying guns. As far as keeping them in the house, Social Security won't ever know. They'll never ask about it. The only way I can see anyone caring about your husband keeping guns is if you have a crisis that involves the authorities - they might ask him to store the guns away from the house for your safety. But, since you're stable, there's no reason for anyone to care.
Sorry for the long-winded answer. Hope it helps! :)
DevAnthony- I wish I were diagnosed with CFS for this very reason you speak of, but none of the Drs I have gone to believe CFS exists. I am currently hurting so bad all I can think about is "I wish I had a pool". Every joint in my body is aching so bad that I can barely move. I normally type pretty well, but am hen pecking my way through this. I constantly stay sick, which I don't know if that is a symptom of CFS or not, but I'm sick at least once a month with some kind of cold/flu/allergy. Also, I'm constantly tired and have been this way since I was very young. My holiday pictures with family is a little embarrassing especially for someone that's as young as me. I'm always found in the recliner or a comfy chair looking like I'm about to fall asleep and that's not normal. I'm going to try and take my time gathering up all that's needed so I don't miss anything.
They'll have to test you for everything under the sun to make sure it's not something other than CFS, so the diagnosis process takes a while. Even after I was diagnosed this week, my doctor told me she still wants me to be evaluated for sleep apnea just to rule out that last possibility, even though neither of us really thinks I have it.
Good luck!