Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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lindasch100 07/03/2016

::I HATE this new site. Can't find anything, posts are not in order, text is too big and takes up too much room. It is hard for me to learn new iinfo. I may not log on any more. I am grieving the loss of our wonderful support group.

okiebug 07/03/2016

Hi, It's been a really difficult trying to use this site. I found if I click where the number of posts are showing, it brings up some of the new posts. I think someone is organizing something on facebook. I'm going to wait it out and see what happens. hopefully they'll fix it very soon.

triunfadora 07/03/2016

I don't understand this new site at all. I've tried to get used to it, but it is just counter intuitive. The posts aren't organized by when they were posted. I too am grieving the fact that many of our very active friends have not been all that active on the new site because of how difficult it is to maneuver.

ladybugdreams 07/03/2016

Hi Linda, this is indeed a big step down from what we had & I have been grieving the loss of the old site. I am thinking this may be the end of DS unless they fix it soon. I will keep coming back for a while to see how it is going & I hope you will too. I hope you have been well. Hugs, Denise

cmiat 07/03/2016

The Facebook group is called MECFS Safehouse and several of us have joined it now. It's intended to just tide us over till this gets sorted out. I certainly hope it does get fixed because I totally agree with what you've all said.

catherinesotomayor 07/03/2016

Ditto.

Lupin1 07/04/2016

I have messaged Daily Strength on facebook and complained.

featherjack 07/04/2016

Here's the Facebook site: https://www.facebook.com/groups/912775458834593/

I don't hold out a lot of hope that ShareCare will get their shit together anytime soon. The site and support wasn't so great before this stinking, smoking train-wreck they call an upgrade, and their rollout has been a farce. I'll be on the FB when I'm not here. I hope to see you al there soon

5454Mariposa 07/05/2016

Maybe we need to set up our tents elsewhere.... Please inbox me (IF you can figure out how... HA!) to talk about alternatives. This is just awful. I had a bad flare all weekend and had NO ONE to "talk to." It was really lonely.

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