Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
I have been hesitating about posting this but I need help. I dont understand this. Eight days ago I started feeling sick. That was after three weeks of stress, hard work and poor sleep. Then yesterday I felt completely symptom free after 2 hours of meditation. I was feeling great. I thought it was over. I even went to the grocery store and I was fine. But today I started feeling horrible again at 3 pm when I started my meditation. I could not meditate. I felt so bad. How can that be? I was ok yesterday!! The first four days were not that bad. On the fourth day I felt better and I had sex. That is when I started feeling REALLY sick. That is strange since sex has not caused me any problems in more than a year. That was three days ago. And now I am feeling a lot worse than the day after I had sex. How can that be? I have had cfs since 2001. I was bedridden from June 2010 until March 2012 . I could not even speak. Since then my health has been improving dramatically. Everything changed. I started working part time and was about 60% of normal health and improving. Every time I went over my limit I had a relapse. But I normally recovered in 2-4 days, if not completely at least enough to keep going. That was until now. Now I am on my eighth day and I feel worse than I have felt during that entire period. I am really worried and scared. I feel almost as sick as when I was bedridden. Why did I feel ok yesterday and today I feel even worse than the day after I had sex? Is this normal in a recovery during a relapse? I am also really worried that I might have lost the health that took me so long to recover. Have I lost that level of health? The worse thing is that I feel terrible now and I dont know what to do. I just want this terrible feeling to stop. How come I felt so good yesterday and today I feel so terrible? Note: After reading my diary I realize I did not really recover in 2-4 days. I just had enough energy to push myself and keep going and I felt ok. Not a good idea. Maybe that is why I am so sick now. I am scared that I lost what I gained.
Hope this helps.
The week before, during, and after my period are all times when I have the potential of feeling so much worse, and yes worrying that maybe it's permanent. What is worse I sometimes don't feel well enough to remember that it's because my of my period.
Another possibility is weather. I have found if it is way too hot or way too cold for me I feel considerably worse.
The important thing is how to handle the crash. Take it easy as needed. Better to err on the side of resting too much then not enough right now. This will help you pull out of it faster. Pushing through can make the crash last longer or even get worse.
And the really hard part. Try not to stress about it. If you can let go of the worry, it won't take as long to feel better. Try a different frame of mind. Perhaps as an excuse to watch your favorite movies, or whatever it is you feel up to and is enjoyable.