Have a great weekend.Hope you enjoy the gym and I pray you don't ever end up with this debilitating illness of CFS.

Sorry Jennifer. I am brain dead and exhausted and mixed you and Mariposa up . Hope you find some satisfying answers for your present condition. Wishing you all the best.

Hi Jennifer, Gee I do hope you don't have CFS. As others have said it's a diagnosis of elimination of other illnesses. You can find a list of all the symptoms at the CDC website too.

We are all here for your support, so please feel free to ask more questions. Personally I have had CFS for 20+years and my protocol is threefold emotional, physical, and spiritual.

I must sleep and rest a great deal. I am vegetarian, drink smoothies, plenty of alkaline water, green tea, some juices when I have the energy to make them. I haven't been exercising, however will start soon with stretching, yoga, and meditation and/or mindfulness helps. Breathing and just literally letting go of all worry keeps me sane.

I am low on energy presently, however feeling well emotionally and spiritually by accepting what is presently..,

May you feel better and find the correct diagnosis...
Peace & Love

Thank you so much for your replies. I'm exhausted from all the specialist appts and diagnostic testing and labs over the past 2 weeks. Did know if I told you guys that my labs show thyroid problems. Extremely low Vitamin D, thyroidglobulin antibody high, parathyroid high reverse T3 messed up and then a thyroid ultrasound that showed multi modular goiter with infectious lymph nodes all the way down to the bottom of my cervical spine. I had an echo that was normal they sent me for that because I had 2 abdnormal EKG showing SVT. So I finally got into endocrinologist and she says I do t think it's your thyroid, I do think you will have to have an u/s every 6 months but she said your labs on your adrenal glands are not right should be high in AM and low in PM. Mine are normal I am and very high at nighttime so she said she's looking at cushings disease and she told me that causes extreme fatigue and a lot of symptoms I am having. So I will do a 24 hour urine Monday and if that's off you do your cortisol sticks in your mouth 4 times a day so they can narrow down when it's high and low. So that's next week and cardiologist. My PCP mentioned the CFS. I can sleep 22 hours get up 30 min later I'm a sleepy again this is craziness and I'm sorry to you guys that are dealing with this!! Thank you for some answers!!

This may sound bizarre but I surely hope it IS your thyroid! even though thyroid issues stink (I have hashis), it's something with a hope of treatment :) fingers crossed!

Jenn
i sleep alot in the winter, in the summer i am pretty good. just think as it as hibernation as i do. then i do alot of light workouts. i walk, hike & laugh with my friends. eating healthy works for me also. i am a retired personal trainer, massage therapist & travel agent

I'd echo that graded exercise can be super harmful for cfs patients. My second year it did help. I swam a lot, but I also took really strong pain killers. I crashed after about a year of it, but I was able to do P90xbefore the end. There is some balance between exercise and wellness for some Cfs patients. It's can be difficult and dangerous to find though. Just don't wear your system down if your exposing yourself to other infections. I ended up getting valley fever from the air and I'm much worse than I was before dealing with two infections.

I hear a lot of dietary success for some patients.it never helped me, but some people get pretty big results.

Vicoden and stimulants. Allow me to function when I need to. I just crash much longer. It's also a balance once again of if your overdoing it. Just make sure to rest a ton if you have to use them.

Antidepressants can boost your energy levels when you find the right one. Celexa helped me but it all depends on the individual.

More recently low dose naltrexone has been found to help some CFS patients.

That all said.
I'd really pursue the thyroid problems with the best endocrinologist you can find even if it means travel. I know a lot of people who upon removing their goiter got completely functional again with really simple hormone therapy. It sounds like you have some leads to go on in that area. If you don't find any solutions there then positive EBV IGM levels is a pretty common sign of CFS. It's kind of an elimination game and it's terribly frustrating looking for the root. Some people get lucky and it blows over as well. Hope you find a good doctor and a quick answer. Always feel free to message.