Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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/ Chronic Fatigue Syndrome Support Group

hi looking for someone to talk to

terry_39000000
terry_39000000

hi i am looking for someone to talk to who is going through the same as i am and that is chronic fatigue syndrome really need a freind or freinds who have the same problem as me to talk to and maybe we can guide each other through are recovery really stuck dont know where to turn or who to go to hopefully here from someone take care people

triunfadora
triunfadora
Terry, you are among friends here. We understand the exhaustion, the pain, the sadness, the isolation. This is a hard illness to have. We get it. We get YOU. I don't follow the boards that much, but feel free to friend me. If you friend someone, you can see their journals. Welcome. I'm sorry you had to be ill to find this place, but you are in the right place to find empathy and love. Much love.
Rosi
Rosi
Hi there Terry, Please friend me too. I have found much support and understanding from being a part of this group. It's true what Triunfadora says about finding empathy and love. There is also a
lot of helpful information that people post about their daily experiences. We are basically guiding each other. Take care.
Starsister
Starsister
Welcome to the CFS group! You will learn much and know you are not alone here! Please say more about yourself.
2DanceAgain
2DanceAgain
Welcome to the group. I have met many wonderfully supportive people here. I don't come here as often because the site has its operational problems. Hope you find the friendship and support for which you are looking.
Bluebonnet08
Bluebonnet08
It's a tough thing to deal with, really sorry to hear that you are going through it. I've felt "stuck" many times with this illness, but don't despair.. there is a lot of new research going on right now with Dr. Ron Davis & his team.
As for where to go with your testing.. have you looked at Lyme? Sometimes that mimics CFS. I would also rule out autonomic problems. I've heard some people discussing mold infections as the source of their fatigue, but don't have a lot of information about that. These are just a few of the avenues you could explore.
One doctor I spoke to said stomach viruses/bacteria could sometimes cause severe fatigue, so it's good to have extensive testing done to rule out issues with that. Just some ideas.
terry_39000000
terry_39000000
Had enough feel like crap all the time stuck in this room can't even walk to do anything hate it this sucks
aussiedi
aussiedi
So sorry that you're suffering. Don't give up and remember that so many of us here have been in your situation and many still are. Many years ago I was bedridden for up to six weeks at a time. I was convinced that I was dying. I was in a living hell. I will never forget it. It all started with over working, stress, and then glandular fever. Things can and do change, so please remain hopeful. Continue to take shelter here at DS and allow us to help you through. Sending love and prayers for healing.