Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
Decided to wear a shirt today which is semi-sheer, needs a black cami underneath. Not a problem, I have many black camis.. unfortunately, could not find one.
Im my previous life you could walk into my closet, go over to the blouses and camis section, pan to black and pick one. Nowadays my clothes are all over the house and I don't have the energy to even attempt to organize them anymore. Doing laundry is a challenge since I have to walk down a steep set of stairs. I'll go down and load the machine and just be too tired for the trek back down to unload. Sometimes I'm so tired I forget to go unload the machine and a day or two later I have to recover the very funky load and redo it.
Many of my clothes are dirty, and the clean stuff is in multiple piles throughout the house, finding anything is hard work. So, I choose another undershirt, get dressed and it looks horrible. Back down the dreaded stairs to go search multiple closets, the laundry drying area, the dirty laundry hampers.. not one black cami to be found.
I do find a black girdle and put that on but it is god-awful! Do you know how much effort it takes to get a girdle on and back off?
I'm running thirty minues late when I finally go out the door and am EXHAUSTED! Its hours later and I'm still crashing.
Everything becomes just a bit harder with CFS, but I refuse to let it get me down. Here's to a good day .. despite CFS.
Im my previous life you could walk into my closet, go over to the blouses and camis section, pan to black and pick one. Nowadays my clothes are all over the house and I don't have the energy to even attempt to organize them anymore. Doing laundry is a challenge since I have to walk down a steep set of stairs. I'll go down and load the machine and just be too tired for the trek back down to unload. Sometimes I'm so tired I forget to go unload the machine and a day or two later I have to recover the very funky load and redo it.
Many of my clothes are dirty, and the clean stuff is in multiple piles throughout the house, finding anything is hard work. So, I choose another undershirt, get dressed and it looks horrible. Back down the dreaded stairs to go search multiple closets, the laundry drying area, the dirty laundry hampers.. not one black cami to be found.
I do find a black girdle and put that on but it is god-awful! Do you know how much effort it takes to get a girdle on and back off?
I'm running thirty minues late when I finally go out the door and am EXHAUSTED! Its hours later and I'm still crashing.
Everything becomes just a bit harder with CFS, but I refuse to let it get me down. Here's to a good day .. despite CFS.
As far as laundry. Um...NOT! It's something I'd have to travel down two flights of stairs to do. Blessed be, I have a willing and healthy husband who does that little chore. But even HE, without CFS, sometimes forgets about it and has to redo the next day. LOL...it's not like CFS is contageous....I think we all get too busy and just forget stuffs! That's my story and I'm stickin to it!!
I'm lucky that I only have to step into my garage to do my laundry. My husband does his own, he does he bedding and towels, and I try to do mine on a day when that's all I have to do and stand a good chance of getting it done. Yes, there are some times my husband has to do it for me, but I try to make that a last resort.
Maybe you oughta just try for simpler clothes that don't require matching or accessorizing. But I know what you mean, why does finding a black cami have to be such an ordeal?
Here's to hoping you have a good day!
Here are some little things I learned from FlyLady that can help.
If you are able, lay out your clothes the night before.
When you can do a part of it, even if it is little. Hanging up 1 blouse is better than putting away nothing.
If it's in a laundry basket, get it as close to where it goes as you can. If not the room where it goes, then somewhere closer to it. Or maybe by the couch so you can fold a little while watching t.v.
I guess the main idea is if you can't do a big job, do a teeny part of it. We don't wear out as fast and at least some of it gets done.
IF you are up to it, check out www.flylady.net. Look for the babysteps for beginners page. The key thing is to adapt it to what you can do. Flylady says, don't burn yourself out by doing too much. Surprisingly this is not a site about chronic fatigue syndrome. She has special pages for special situations, like for those who work outside the home, parents, etc.
So I used to be on FlyLady's email list. Sometimes she would get emails from people and she would take of their names and pass it along to the rest of us. One person had a chronic illness and couldn't do much at one. She adapted FlyLady's advice. She set her timer and worked for 1 minute at a time. Then she would rest for something like 20 minutes or more. Then she would go back and work for 1 minute again.