Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
Hi there,
This is my first post in a support group ever. I am hoping you can help me. I have been exhibiting ME/CFS symptoms since early July. Have been to my general practioner twice for blood testing; my blood looks fine to him. I had an MRI; that also looked fine. Not MS. He referred me to a neurologist who suggested that I might have ME/CFS which it seems she doesn't specialize in because she didn't give me any follow up to do, just a print out with general information that she pulled up on the computer. Online I have found 7 clinics that specialize in ME/CFS but the only one in North Carolina that I could find is booked until February of next year. So if you could share with me what type of doctor you are seeing (Rheumatologist? Internal medicine? Infectious disease? ect) then maybe I can figure out what to do next.
With many illnesses early intervention seems to be the key to long term success so I am trying to be as proactive as possible with the reccommended diet changes and pacing. But don't I also need to be under the care of someone who specializes in this? Thank you for any insight you can provide.
From your post, you are doing what you can, pacing and diet changes. My specialists said that even exercise that is recommended for most of us to maintain a healthy life isn't good for us since the latest is that the mitochondria in patients with CFS/ME aren't doing what they are suppose to whether they have been damaged by infection or genetic issue the mitochondria don't recover normally from exertion and that is why any type of exertion whether physical, mental, etc. can be too much. I started realizing at parties I become very quiet now, and my doctor explained that is because I am over exerting myself and that is my way of trying to conserve my energy. Listen to your body. I wish you the best.
Thank you so much for your reply! This is very helpful information and I will take it to heart. I am very grateful to you for sharing this with me.
Wishing you continued improvement!