Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
I know that I have posted this quite a few times but the Lord keeps putting it on my heart. I have had Lymes all my life but was misdiagnosed for years. Told that I had CFS and Fibro. Even was treated at the Philadelphia Fibro center
Told the doc it was Lymes not Fibro and not EBV. Well he had me on so much meds that I refused tto take anymore when I was on 3 different things for sleeping and still wasn't sleeping and he wanted me to take tranquilizers.
I drew the line there. Well anyway the reason I am posting this is that in all the research I do on Lyme it is coming out more and more that most of the people in the U.S. and other parts of the world actually have Lymes who are diagnosed with Fibro, CFS, LUPUS,ALS, and the list goes on.
It is spread by of course ticks, but also, biting flies, mosquitoes. fleas and other vectors.
It is transmitted through breast milk, eutero(pregnancy) how myself and my daughter contracted it. Sexually how my husband got it from me.
I guarentee you ask your doctor info on this and they will tell you none of this is true.
The ELISA and WESTERN BLOT test are told they are reliable nope!!
Told most peopel get the rash , WRONG again. I have been tested for the last 10 years and tested negative everytime. I have had it so long that it is in my blood makeup. You can't tell the difference in my blood from having it so long.
They (spirochette ) which is the Lyme can make you have symptoms of so many disesas it is scary. There are over 120 symptoms and it effects every organ of your body.
CDC doctors, Ifectious Disease doctors have no clue. Only docotrs who have studied this called LYME LITERATE Doctors.
Anyway the best top Lyme doctors believe that so many people are misdaignosed that if it were revealed it would bankrupt the nation trying to treat them all.
If you are being told you have one of these diseases I mentioned and can't find relief you may have this disease. And another thing they lie about too is it can kill. It may just be the silent killer Lyme.
Please know I don't want to scare anyone but so many people have this and have no idea because most GP are not trained to look out for the symptoms and because they mimic so many other things.
It is not even out of the question and mine is one and there are afew on the Lyme group where whole families have this. My family struggles daily with this. If you even think you could have it the slightest thought in your mind google or go to another search engine and look for LYME SYMPTOMS.
Told the doc it was Lymes not Fibro and not EBV. Well he had me on so much meds that I refused tto take anymore when I was on 3 different things for sleeping and still wasn't sleeping and he wanted me to take tranquilizers.
I drew the line there. Well anyway the reason I am posting this is that in all the research I do on Lyme it is coming out more and more that most of the people in the U.S. and other parts of the world actually have Lymes who are diagnosed with Fibro, CFS, LUPUS,ALS, and the list goes on.
It is spread by of course ticks, but also, biting flies, mosquitoes. fleas and other vectors.
It is transmitted through breast milk, eutero(pregnancy) how myself and my daughter contracted it. Sexually how my husband got it from me.
I guarentee you ask your doctor info on this and they will tell you none of this is true.
The ELISA and WESTERN BLOT test are told they are reliable nope!!
Told most peopel get the rash , WRONG again. I have been tested for the last 10 years and tested negative everytime. I have had it so long that it is in my blood makeup. You can't tell the difference in my blood from having it so long.
They (spirochette ) which is the Lyme can make you have symptoms of so many disesas it is scary. There are over 120 symptoms and it effects every organ of your body.
CDC doctors, Ifectious Disease doctors have no clue. Only docotrs who have studied this called LYME LITERATE Doctors.
Anyway the best top Lyme doctors believe that so many people are misdaignosed that if it were revealed it would bankrupt the nation trying to treat them all.
If you are being told you have one of these diseases I mentioned and can't find relief you may have this disease. And another thing they lie about too is it can kill. It may just be the silent killer Lyme.
Please know I don't want to scare anyone but so many people have this and have no idea because most GP are not trained to look out for the symptoms and because they mimic so many other things.
It is not even out of the question and mine is one and there are afew on the Lyme group where whole families have this. My family struggles daily with this. If you even think you could have it the slightest thought in your mind google or go to another search engine and look for LYME SYMPTOMS.
And no ... I don't have Lyme's. I'm thankful for that!!!
Most of the material I found online seems to agree that Lyme is not found in southern Florida, but then other articles seemed less certain about that. I was tested for it when I got diagnosed with CFS, but now I'm reading here about false negatives??
Isn't anything ever straight forward in medicine? First you hear one thing, then it's something altogether different.
that kind of pisses me off you said that.
stragiht out of wikepedia....
While Lyme spirochetes have been found in insects in addition to ticks,[46] reports of actual infectious transmission appear to be rare.[47] Lyme spirochetes have been found in semen[48] and breast milk,[49] however transmission of the spirochete by these routes is not known to occur.[50] Congenital transmission of Lyme disease can occur from an infected mother to fetus through the placenta during pregnancy. The risk for fetal harm is much higher in the first three months of pregnancy than later. Prompt antibiotic treatment almost always prevents fetal harm. Pregnant Lyme-disease patients cannot be treated with the first-choice antibiotic, doxycycline (see below), as it is potentially harmful for the fetus. Instead, erythromycin is usually given; it is less effective against the disease but harmless for the fetus.[51]
film on Lyme disease called under our skin, I highly recommend it.
I never tested for lyme because I've never lived near woods or ticks and very few fleas. But anything's possible. God help us!
I just wanted to give people a heads up that it possible could be Lymes if you have not had any luck being treated for CFS. Yes it is mistaken for alot of things if you read my posts look at all the things I was diagnosed for and took medicine for that could have done damage to me since i didn't need it.
Thank you to those who were intelligent enough to read my post correctly.