Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
I don't post a photo because I don't have the energy to do so, and I don't ever put a real photo of myself on the internet because I don't want my personal info getting all over the internet.
Welcome
I'm on the Oregon Coast, but I was born / raised in Ponca City Oklahoma which is near the Kansas border and about 2 1/2 hours or so from Wichita Kansas.
Currently about 2 miles from the Pacific Ocean which would be a whole lot cooler if it was a tropical beach or something.
I don't post my pic because I've gotten a lot of negativity in my community about my illness. I don't want these local people giving me trouble after they read my posts.
Anonymity is an important part of what DS is all about, it allows us to say what we really feel and talk about things we wouldn't want our families and neighbors to gossip about.
I like that DS is about anonymity for those who want it and I completely respect those of you who don't want to be public. We each have our reasons for things. As for me, I don't mind. I've always been told I'm transparent. I tried to keep my illness secret until the last few years when I had no choice. Personally, I have always found that talking about things helps me therapeutically no matter what the subject... I lost my first husband and my daughter wouldn't talk about it for a year until she started losing her hair. This illness has made me lose friends and family as well as my job, financial security, the house I lived in for 25yrs, my car, etc.... But it is what it is. And I will find people who identify and understand to help me get through, not matter where they are
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And I've had enough chaos in my life that sometimes I've just had to give up and say "Oh, well! What are you going to do about it? --Some things you just can't change so you have to learn to live with it." ....we did not CHOOSE this illness! and we have to do what is best for US, no matter what.
I need to remember to check on here but realistically I have a lot of problems with brain fog and don't always think about it, plus I am usually on FB.
I'm going to post my story on here if you are interested. Or look me up on FB... Diana's CFS/ME diary.
You all take care of yourselves above all else!!
I am from Anchorage, Alaska and have experienced ME/CFS for almost 12 years now.
I don't post my pic because the one time I did I got some uncomfortable messages....
So, you get my cat.
I have pics up, though some are limited to access by friends only to protect my family.