Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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/ Chronic Fatigue Syndrome Support Group

CFS/ME experimental treatment

flergirl
flergirl

Hello to my fellow CFS/ME sufferers. I am writing to share my recent experience with transcutaneous magnetic brain stimulation. My sleep specialist has seen some improvement with the treatment in his patients with hypersomnolence. Unfortunately, this treatment did not work for me and I spent almost 3 months largely in bed from the significant fatigue. I had thought I was limited in my physical abilities before, but this treatment knocked me on my tush! It has been a few weeks since therapy ended and I am returning to my baseline.



I haven't given up yet though. My doctor plans to try flumazinel late October so I will keep everyone updated if I have better luck with that treatment. Trying to stay positive and I remain hopeful I will find a solution to regain some of my lost physical abilities.

BooPainter
BooPainter
I am so sorry you did not get the results you wanted, but at least you are not giving up.
aussiedi
aussiedi
Hi there. I've never heard of it but will check it out. Sorry it didn't work for you. I think we have all experimented with numerous different treatments. It's a complex illness and so many areas have to be addressed. Sleep is vital along with a healthy clean diet, plenty of rest, and learning relaxation techniques. Restorative yoga such as yoga nidra definitely helps to heal the adrenals.
Avoiding stress as much as possible and regular positive affirmations are a must.
Wish I could apply my own advice more.......I do try but have a lot of family stress. So we all just do the best we can. Hugs to you
Lost111
Lost111
Oh my gosh, I just posted about hypersomnia! So it is independent from the CFS? I was soo hoping that maybe I just had hypersomnia and not CFS. I'm sorry you had to be stuck in bed for that long. So far I'm still working, but using a lot of leave. Not sure what's going to happen after I'm out. Probable be let go. UGH Best wishes to you!