Alot of times CFS and Fibromyalgia go hand in hand and that could be one possibility. I cannot take pain meds, but that feeling of bone-deep ache hasn't gone away in 5 years. Lyrica seemed to help, but it caused me vision problems. Talk to your doctor. Ask for ideas. Warm baths with epsom salt helps too. Keep positive, it helps.

I don't just get ache, I get pain... bone pain, and muscle pain... but especially bone pain. I have had it for years. I don't know why we get it... but agree that keeping warm and trying to keep muscles relaxed helps - so no sitting awkwardly and avoid things like having arms raised for long periods or over doing typing etc. I find Tiger Balm helps somewhat too when rubbed into affected areas.

If you muscles are hurting, it can be related to producing too much lactic acid when exercising. This was particularly a problem for me when I first got sick. The pain was excruciating following exercise, however, it is not so bad now... so that's something.

Yes, fibromyalgia and CFS do go hand in hand. I have had CFS probably since I was 16. Had "trigger points" in my neck with many headaches while in 20's but thought due to college stress. Hard pressure for ~ 1min (have someone use their elbow with a constant deep pressure) hurts very badly but provides some relief after. Started getting the deep bone aches in my knees, hips and ankles mostly in the past 2 years. I am now 31 and toss and turn and sleep in crazy positions, rubbing my joints during the daytime due to the achy pain. Thought I had MS due to clumsiness at times in my hands, buckeling of my knees, brain fog with difficulty finding words, the fatigue and the worsening symptoms along with my age. ( I work in healthcare and too much knowledge is sometimes dangerous) After ruling out all blood work, sleep studies, MRIs, and many co-pays to insurance, i was diagnosed with FM and CFS. Tried Cymbalta- still sleeping jags of 18 hrs+ and long naps after work, calling off work at times just to sleep, leaning against the shower because exhausted- all that fun stuff. Just recently trying Savella which was recently approved for FM. Have not yawned at work at all since on it, but having a lot of side effects so far. Hoping these will subside. Took hot baths all last winter for over an hour, hot pads, etc. Helped for a bit. Don't know what my triggers are. Have heard that inflammation-i.e. drinking alcohol, diet etc- may have a large role. Don't know, but wish you luck.

Just thought also, electrical stimulation helps with trigger points and can alleviate some of the achy pain at times, but you need to know how to use. Get a referral from your MD for physical therapy, massage therapy or chiropractor that have e-stim as well. Need the referral for insurance to pay and would not recommend trying e-stim unless you have been trained how to use. But it does help for short term relief. Also, need a very wonderful significant other that will give you massages. ; ) Yoga is supposed to help, but I haven't had the energy to initiate.

i don't ache at all with ME unless I overdo it. Think my diet helps i.am gluten, sugar and potato free. oh am dairy free. and careful pacing. or maybe everyone is different

I think we are missing the fact that muscle pain is one of the primary symptoms of CFS aka ME. ME stands for myalgic encephalomyelitis, and myalgia is the medical term for muscle pain.

Of course, some believe that these are different illnesses, CFS and ME, but as for myself, I don't buy that at all. When all is said and done, there is just so much that needs to be done to properly describe our symptoms, standardize the case definition, and educate the caregivers so they can properly inform their patients.

Maybe if they someday take us off the back burner, this will all be cleared up.

I really don't agree that you have fibromyalgia because you have muscle pain, but I'm not saying that you don't have it. I think you need a positive result on pressure points to have that diagnosis, so there's no harm in getting checked by a rheumatologist, except maybe to the wallet. I get a lot of wallet pain at the doctors.

I have both CFS and fibro. I have found that light exercise helps when I can do it. Walking is good, but not too far. Also baths with epsom salts and being in a a pool helps with the pain. The other thing I have tried recently is to use a topical cream like Freeze? or Bengay that has pain reliever in it. sometimes awhen the ache is really bad, I have to apply it at work. also, the right kind of massage helps. Cold weather and high humidity and sudden weather changes make it worse. Oh, and stress, too. I also take a muscle relaxer twice a day most days. The pain is still there, but manageable about 80% of the time.