Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
6:00 am Been up since 3:00am, stressed out, tired, I can tell this is going to be a lousy day.
9:00 Have to take my car to the dealership to get the alarm fixed. My instinct tells me to call to verify location but I don't .. and go to the wrong location. That costs me 30 mins. I get there and the technician does not have all he needs so I have to come back..sigh. Runnign an hour late for work...
10:00 I'm worried. I feel like crap, I want to cry for no reason, can't get my focus going and I have a HUGE client meeting scheduled for 2:00 today. Not only do I need to be present, but I need to be sharp! This is not good.
11:00 Remembered I had to get my bloodwork done. Could not manage the fasting glucose today, so we'll put that one off. Have prescriptions to fill but I'm at the pharmacy searching through my medical docs and I've lost my prescriptions ..again.
12:00 I'm crashing! The yawning has started, I want to keel over. I just want to curl into a ball and cry. I CANNOT CRASH TODAY! Cancelling my meeting is not an option. I'm realling hating this illness right now.
1:00 The client called to cancel. THERE IS A GOD! Funny enough I'm actually feeling a bit better. My sister suggested a malt beverage which tasted god-awful but seems to have helped. I'm a bit loopy and lightheaded now so who knows what the rest of the day holds...
9:00 Have to take my car to the dealership to get the alarm fixed. My instinct tells me to call to verify location but I don't .. and go to the wrong location. That costs me 30 mins. I get there and the technician does not have all he needs so I have to come back..sigh. Runnign an hour late for work...
10:00 I'm worried. I feel like crap, I want to cry for no reason, can't get my focus going and I have a HUGE client meeting scheduled for 2:00 today. Not only do I need to be present, but I need to be sharp! This is not good.
11:00 Remembered I had to get my bloodwork done. Could not manage the fasting glucose today, so we'll put that one off. Have prescriptions to fill but I'm at the pharmacy searching through my medical docs and I've lost my prescriptions ..again.
12:00 I'm crashing! The yawning has started, I want to keel over. I just want to curl into a ball and cry. I CANNOT CRASH TODAY! Cancelling my meeting is not an option. I'm realling hating this illness right now.
1:00 The client called to cancel. THERE IS A GOD! Funny enough I'm actually feeling a bit better. My sister suggested a malt beverage which tasted god-awful but seems to have helped. I'm a bit loopy and lightheaded now so who knows what the rest of the day holds...
Every year I had to keep cutting back on my work hours, now I don't work at all. It took me 3 years of renewing my gym membership until I finally let that go. It took me until just 3 weeks ago, the 5 year anniversary of becoming ill, that I finally decided that I will not renew my professional certification. It's just time to let that go too.
I feel your struggle because I was the same way, work above all else, dragging myself to work because I just had to, trying to be the same person when I'm really not, and looking back I see it just made me worse.
You'll find your way. I know how hard it is to ask for help, if you're like me you're independent, strong, the one other people go to for help. It's hard to be the one to ask for it. I wish for you an easier time with your struggle, I wish soon you'll see what you really need is to take care of YOU.
Hugs,
Genie
The social benefits where I live (Jamaica) can pay for just about 1 doctor's visit. Can't buy a week's worth of food.
I have no idea what the future holds for me, but I'm a fighter. I'll fight to function as much as I can for as long as I can, and if I get to the place wher I lose the ability to fight (again) then I deal with that when I get there.
One day at a time...
I am blessed to have a second income in my home and was able to get on disability pretty quickly. I was a single parent myself for 19 years...so I know that responsibility. I give you so much credit for hanging in. It's so hard when you're this sick.
If you get to a place where you can no longer work, there IS SSD and I would be happy to help you along with that process. In the meantime try and pace. We're all here for ya!!