Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
This is my first time posting here although I've been reading on here for probably six months or more. You all have helped get me through some rough days, and I thought today it's about time I joined in and said something. Thank you all! :)
I've had CFS for over going on 27 years now. I got mono when I was ten and the rest is history. It's been a long hard road with the last ten being the hardest. I try to remain positive as much as I possibly can, although fail miserably at that sometimes. I have a beautiful daughter, age 7, and a supportive husband (although it took him many years to really start getting it, but I'm so glad he does now, that helps a lot!) My biggest struggle sometimes though is feeling like I fail them. I'm not very fun and have the miserable "just kill me" look on my face too much of the time. :( It's hard, as I know you all know.
I've tried my heart out at beating this illness. I'm at the point now where I don't want to stop fighting, but I don't want to expect to get better either. The expecting is what has set me up for endless disappointments.
My hope is Jesus! I'm going to be rid of this one day, and all the other sufferings life brings, and spend a glorious eternity with Him! I'm excited about that!
Romans 8:18
18For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us.
Hallelujah! :)
Again, thank you all for what you do on here! It means a lot to me and so many others I'm sure!
I've had CFS for over going on 27 years now. I got mono when I was ten and the rest is history. It's been a long hard road with the last ten being the hardest. I try to remain positive as much as I possibly can, although fail miserably at that sometimes. I have a beautiful daughter, age 7, and a supportive husband (although it took him many years to really start getting it, but I'm so glad he does now, that helps a lot!) My biggest struggle sometimes though is feeling like I fail them. I'm not very fun and have the miserable "just kill me" look on my face too much of the time. :( It's hard, as I know you all know.
I've tried my heart out at beating this illness. I'm at the point now where I don't want to stop fighting, but I don't want to expect to get better either. The expecting is what has set me up for endless disappointments.
My hope is Jesus! I'm going to be rid of this one day, and all the other sufferings life brings, and spend a glorious eternity with Him! I'm excited about that!
Romans 8:18
18For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us.
Hallelujah! :)
Again, thank you all for what you do on here! It means a lot to me and so many others I'm sure!
My anxiety comes and goes. I think today it was triggered by some new progesterone drops I'm taking. I didn't know what was happening at first and then I read that it could do that.
I just did an epsom salt soak and feel much more relaxed now, so hopefully I can sleep good tonight.
In the hopes of changing your perspective....you haven't failed your family, the cfs has failed you. And, it isn't fair to expect yourself to live outside the limits of your cfs.
And since you are a mother, this might help. You know how your kid isn't like any other kid? And you know how place expectations on your kid based on what they have learned so far? Can you imagine judging your kid based on things they have never learned? That is about as kind as judging yourself as if you didn't have cfs.
And I really understand your cancer comparison because I have made it too! Cance ends....cure or death. But cfs does not. And it is debilitating, unlike diabetes. I tend to go there when I'm having my, "I can't do this anymore!" moments. My moments like that tend to pop up if I'm having my time of the month soon and I have a flare up...bad combo.