Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
Hiya all
I am usually a pretty happy person and have reached a level of acceptance about this illness, I am lucky that I am not bed bound or homeless and I know that.
But sometimes it just overwhelms me and I want to cry and bargain my way out of it and to be well soooo bad, so i can have some control over my life to be able to make decisions. I know that we all have problems even if we have great health but I am at the age now where the chance of having a family is going, everyone around me is getting "sorted in life" and my life just stays the same and I struggle everyday to get by.
I don't really have much physical or emotional support with this illness and have to do everything myself to take care of myself, I live with the threat of not having a home if my ex partner decides to stop contributing to the mortgage and just want to be able to make plans for the future
I am pushing myself to still work part time and this has lead to me getting worse and worse over the years but don't seem to be able to get any financial help (live in the uk btw)
Just feeling so overwhelmed and needed to get it out, sorry to be so negative :)
xxx
I am usually a pretty happy person and have reached a level of acceptance about this illness, I am lucky that I am not bed bound or homeless and I know that.
But sometimes it just overwhelms me and I want to cry and bargain my way out of it and to be well soooo bad, so i can have some control over my life to be able to make decisions. I know that we all have problems even if we have great health but I am at the age now where the chance of having a family is going, everyone around me is getting "sorted in life" and my life just stays the same and I struggle everyday to get by.
I don't really have much physical or emotional support with this illness and have to do everything myself to take care of myself, I live with the threat of not having a home if my ex partner decides to stop contributing to the mortgage and just want to be able to make plans for the future
I am pushing myself to still work part time and this has lead to me getting worse and worse over the years but don't seem to be able to get any financial help (live in the uk btw)
Just feeling so overwhelmed and needed to get it out, sorry to be so negative :)
xxx
I'm a big believer int the power of faith .. This phase of life is teaching me to rely less on self sufficiency and rely more on grace. Its a hard lesson, but i just have to keep reminding myself that i'll be ok. No matter what .. I' ll be OK. You will be too...
Thinking about what might or might not happen, sometimes makes things harder. So much of life is out of our control, and the more I realize that, the easier it seems for me to let go of worrying. Sometimes solutions to my problems just appear without me having to do anything. You have the support of those like us who totally understand and just remember there will be better days.
My best regards,
Suzanne
Thanks to the healthcare act, my full-time job is getting cut before I've even had a chance to pull myself together but, like Max says, we'll be OK. Maybe not what we planned or wanted but, OK.
I just picked up a book someone on one of these posts had mentioned called "How to be Sick" and it looks quite promising. After I found this website the other night and started reading these posts, I realized I haven't really gotten to the place of acceptance with this illness yet. I think that once I stop fighting the idea so much, perhaps I'll learn better coping strategies.
I always manage to make it through the overwhelm, though, and I'm sure you will as well! I think that those of us with CFS are a tenacious bunch - we have had to be to get through this.