Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
Hi,
seems like half the time I say too much and the other half I don't know what to say.
I've been sick for a long time now...........I try to be in a pretty upbeat positive place, but I can always use encouragement and support.........
AND I want to be a source of enc/supp in care of the journey of others.
So after the holiday I feel pretty whipped...........I want to extend an invitation of friendship and welcome to all who come here for help and hope..........to listen and share this road we're on........to find a way to be at peace with ourselves the way we are.
to continue to learn how to let of of what we don't need, how to streamline our lives so that they work..........to shut out the negativity and find ways to live a life of joy and peace.
i'm not all about the kumbaya lol, but i do try to be upbeat and remain hopeful.......i spent a very long time upside down, angry and sad.
i want to live the best life i can and be ok with the me I am now. to know that if I protect my spirit, I can find joy in simple things.
i can be at peace. i can't unblock locked up minds .....(people who don't believe what we have or how it impacts us).......but i can vent, i can move onward and upward. i wish i could do more in care of others and myself too.
i believe that it is ok to say we are enough, we are amazing, we don't give ourselves enough credit by half..................be of good courage, seek hope and keep sharing your story as you can with others........you have no idea how much ya'll inspire and motivate me to keep going..........
i am incredibly tired, but so grateful that i have a soft mattress, a warm home and nourishment for my mind and body.........the wind is fierce today...............stay safe and be kind to yourselves.........you are precious!
seems like half the time I say too much and the other half I don't know what to say.
I've been sick for a long time now...........I try to be in a pretty upbeat positive place, but I can always use encouragement and support.........
AND I want to be a source of enc/supp in care of the journey of others.
So after the holiday I feel pretty whipped...........I want to extend an invitation of friendship and welcome to all who come here for help and hope..........to listen and share this road we're on........to find a way to be at peace with ourselves the way we are.
to continue to learn how to let of of what we don't need, how to streamline our lives so that they work..........to shut out the negativity and find ways to live a life of joy and peace.
i'm not all about the kumbaya lol, but i do try to be upbeat and remain hopeful.......i spent a very long time upside down, angry and sad.
i want to live the best life i can and be ok with the me I am now. to know that if I protect my spirit, I can find joy in simple things.
i can be at peace. i can't unblock locked up minds .....(people who don't believe what we have or how it impacts us).......but i can vent, i can move onward and upward. i wish i could do more in care of others and myself too.
i believe that it is ok to say we are enough, we are amazing, we don't give ourselves enough credit by half..................be of good courage, seek hope and keep sharing your story as you can with others........you have no idea how much ya'll inspire and motivate me to keep going..........
i am incredibly tired, but so grateful that i have a soft mattress, a warm home and nourishment for my mind and body.........the wind is fierce today...............stay safe and be kind to yourselves.........you are precious!
the people who post on here. I too wish you warmth and ease
and contentment at this time of year. Yes. There are so many
messages everywhere to 'be happy' at this time. I feel it adds an
other layer of pressure to those of us who are challenged by our
illness. I find myself sometimes feeling upside down
emotionally and psychologically and
struggling with feelings that are negative or just plain difficult.
I am getting better at 'letting them be'. They come, they
go. In terms of what you said about 'being at peace' and
that you can't unlock locked up minds when people don't
grasp what we're dealing with. That was so very well said.
I needed to hear it again. Probably daily for a while wouldn't
hurt either.
All that you wrote, I found inspirational. The message
to work on ourselves and come to acceptance, love
really and peace. What could be a better message to
hear at this time of year. ?
Thank you so much Serce for this post. It has
definitely started me off on a better note for today. and
thoughts to keep in mind in the year ahead.
blessings, Rosa
Thank you for your comments........I typically have a tough time every January.......the holidays wear me out, even w/limited activities and rest. I can't seem to get through January without being knocked down for weeks.
I'm trying to prepare my thoughts and emotions for this January.
I need simple ways to remain afloat......to stay up, to be ok. I don't need to be sad all the time because of what I can't. I need to lean in and be able to relax...........it is hard when life is happening all around and I am in this small tight bubble fighting a pain/fatigue battle of epic proportions. I need to be ok with what I can......can is an important friend to me.
I know I am not, but sometimes I feel so very alone. It gets so quiet.........so far away from LBD (life before disease). This marks my 16th year of illness, my 3rd year at home full-time.
The road IS long, with MANY a winding turn..........that song seems so apropo today.................by sharing the journey we can all carry each other........."He ain't heavy........he's my brother."
If this is too much sentiment for some, that's fine........I know that a sense of community is very important to those who can't even sit on the sidelines at the game......cause they are too sick, too tired.
Those who can't even get to the doctor until they feel well enough........regular sick is very different from this kind of sick. Those who have to give a week or two to total bed rest every time they go to get the most basic of necessities, food. I wish I had found this site long ago............I felt like the only one drifting on the ocean........so alone, so scared and then I got pulled out of the water...........found out what was going on, what was wrong........relieved to be able to call it by name...........and then thought how do I cope, manage, find a way through the fog?
Wishing everyone a soft place to land, a place to turn when times get tough, the knowledge that this is a friendly supportive place where people can let their hair down, tell it like it is, share info.......and sentimental or not, we can let others know that we are all under the same big sky............you are not alone.