Charcot-Marie-Tooth Disease Support Group

Charcot-Marie-Tooth disease, also known as Hereditary Motor and Sensory Neuropathy (HMSN) or Peroneal Muscular Atrophy, is a heterogeneous inherited disorder of nerves (neuropathy) that is characterized by loss of muscle tissue and touch sensation, predominantly in the feet and legs but also in the hands and arms in the advanced stages of disease.

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CountryBabiDoll
CountryBabiDoll
My youngest brother has cmt 1a. I wanted to ask what are some of the long term effects for cmt ? Does this also effect the learning process? What is some advice you would give a parent for raising a child with cmt 1a? Thank you for any advice given. I have done some research but that has only gotten so far. Thank you again and have a nice day
Jonsparky
Jonsparky
Here is a real life story of a girl growing up with CMT.
http://caregiver.com/channels/cmt/articles/Stories/growing_up_with_cmt.htm
deleted_user
deleted_user
Hi, I see not many people have replied, not sure whether this will be useful but I actually have a blog on tumblr about living with CMT. It has exercise and lifestyle advice. It's been 36 years since my diagnosis and I am still living an active lifestyle, with a family and running a business I own. My best advice is to stay active, but know your limitations and don't be afraid to ask for help. You can find information in a lot more depth on my blog: http://shanewilliamsoncmt.tumblr.com
Just remember to remind him never to give up :)
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