Cerebral Palsy Support Group
Cerebral palsy or CP is the most common childhood physical disability. It is a permanent physical condition that affects movement. There is no cure for cerebral palsy, but various forms of therapy can help a person with the disorder to function more effectively. If you or a loved one has cerebral palsy, join the group to share your experience or get advice from others.
I have Cerebral Palsy. I always had muscle spasms in my legs, but when I was 14, they changed. They began happening all over my body on a daily basis. Without warning, I'd start shaking violently for a few seconds. Sometimes, I'd kick my legs out. Other times, it was my head. This happens over and over daily. At first, it greatly impacted school and my general ability to function. I'd have to go home and sleep because they were so exhausting. I had brain scans and all kinds of other tests. I tried 3 different very strong muscle relaxants in one school year. None worked. Finally, I found one that did at 16. Needless to say, my once shining GPA went down the tubes fast. I was told this was a symptom of my CP.
Cerebral Palsy symptoms are not supposed to worsen. That's what they tell you anyway, but I have seen this disability wreck havok on myself and others as they transition from teens to adults. I believed it was a symptom of CP.
During this time, I was being severely abused by my mother. Hence, my first round of PTSD. The origin of the spasms would not bother me except that I have pretty intense and violent ones when I hear a very loud noise, like a motorcycle or fireworks. And when I am stressed, I have them more often.After flashbacks, they're unbearable. My dad is convinced it's a response to trauma. My therapist specializes in trauma and even she's not sure. Anybody who is not disabled have muscle spasms like this as a manifestation of PTSD? Any thoughts would be helpful. The spasms are very painful and keep me from driving. It also screws with my blood sugar a bit.
Cerebral Palsy symptoms are not supposed to worsen. That's what they tell you anyway, but I have seen this disability wreck havok on myself and others as they transition from teens to adults. I believed it was a symptom of CP.
During this time, I was being severely abused by my mother. Hence, my first round of PTSD. The origin of the spasms would not bother me except that I have pretty intense and violent ones when I hear a very loud noise, like a motorcycle or fireworks. And when I am stressed, I have them more often.After flashbacks, they're unbearable. My dad is convinced it's a response to trauma. My therapist specializes in trauma and even she's not sure. Anybody who is not disabled have muscle spasms like this as a manifestation of PTSD? Any thoughts would be helpful. The spasms are very painful and keep me from driving. It also screws with my blood sugar a bit.
I feel your pain with the spasms. I get cramps and spasms in my legs all the time.
I was abused as a child as well, and waken violently from sleep, on the rare occasion that I do sleep. This is one of the reasons I can't maintain relationships, since I find it difficult to sleep in the same bed without the possibility of injuring the other person.
It's a bunch of crap I don't really want to have to deal with. But what can I do? Just keep on and do what I can.
CP has "returned" like an SOB now that I am in my 40's. In some ways the symptom have gotten worse, much worse, especially general pain. At the moment I am having what I call a high frequency spasm in my right leg, I actually feel several sensations going because so there are so many muscles from my hip to toe. But the spasms/tremors have gotten worse after 39yo, to the point of me burning so many calories that I dropped 37 pounds over the last 5 years - and I was already skinny to begin with! The only non-Benzo that helped was Baclofen, it helped a lot with the spasms, but it ramped up my metabolism to the point of breaking out in sweats and bizarrely made me lose more weight.
Magnesium does zero for me. The best thing that I have found for my spasms and related pain, as well as improving weight gain, is only legal in a handful of states as of yet...