Cerebral Palsy Support Group

Cerebral palsy or CP is the most common childhood physical disability. It is a permanent physical condition that affects movement. There is no cure for cerebral palsy, but various forms of therapy can help a person with the disorder to function more effectively. If you or a loved one has cerebral palsy, join the group to share your experience or get advice from others.

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jessekay 01/19/2018

so as you may all know I have cerebral palsy and I was just in deep thought today and figured I'd ask a few of my fellow people that struggle with this everyday if they ever get tired of people asking them what's wrong with you or what happened to you I seem to get asked a lot more than normal some days it doesn't really bother me but some days I wish I was left alone

ramiroh 01/20/2018

Hello, I have hemi cp on left. I used to get asked that. I would lie to them sometimes. I t caused me to try to work harder to try to strengthen up.

jessekay 01/21/2018

Yeah I get what you're saying cuz I go through the same thing it just happens so often when they ask me and lately I've been getting a lot of old do you do therapy and stuff and when I really don't it's kind of my business but it's not going to stop other people from asking I just have to accept it I guess

Once_ler 03/25/2018

My wife has CP. The thing that offends her is when people stare. She'd much rather someone get the nerve to just ask plainly than sit there and stare at her.

emmyb 06/26/2018

I am in high school and I find that kids can be really rude. There is this one kid who asked if my hand was broken and why my handshakes are so bad. I just ignore it and generally people are good and defend me if they hear. When I am with my little sister she goes all out on people telling them its none of their buisness and stuff like that. I still do not know how to approach comments and stares.

jessekay 06/27/2018

Yeah it's easy to get bullied in school I was also bullied too so I understand how you felt I didn't experience shaking of the hands but one of my hands I have very little use of and it's nearly paralyzed I'm used to people asking me what happened to me more than often I relate to you thank you for writing me :-) and giving me a comment

Elastagirl 08/03/2018

I have spastic diplegic CP. I used to feel the same way as you. I was able to walk unassisted with a limp on good days. My co-workers never knew I had CP for over 20 years. They assumed I had twisted my ankle or something. I was irritated if someone asked what was wrong. I worked hard to be "normal".

As my spasms increased over the years I had to use a walker and now use a wheelchair. This evolution has changed my mind. I use the opportunity to inform people who ask questions about me what CP is and how it has affected me. I don't know about you, but many people as well as doctors are uninformed and do not even know about CP despite its prevalence. I think the more we can educate people the better.

jessekay 08/06/2018

Yeah my CP is barely noticeable as well thank you for your input I appreciate it

GrecianMuse 11/05/2018

I used to see on dailystrength a group called AbleDisabled.is it still here..very empowering!...Aphrodite. btw..i was diagnosed age 2 w.triplegic spasticity.mild ...moderate

jessekay 11/05/2018

Thanks for the info really appreciate it yeah I've been on daily strength and it's a little slow now in these days but I like to get on and get opinions and write down my feelings it helps on me a lot

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