Celiac Disease Support Group

Celiac disease is an auto-immune disorder of the digestive system that occurs in genetically-predisposed individuals. It is characterised by damage or flattening to all or part of the villi lining the small intestine, which interferes with the absorption of nutrients. This damage is caused by eating anything with gluten (gliadin), a protein found in wheat, rye, and barley...

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nickiraeleen 12/14/2016

This page is always so negative and so I thought I would share a little bit of joy. I have had diagnosed Celiac through blood and scope for more than 6 years. I can assure any new comers that you will feel better.

I know it’s hard. I had to have cried every time I saw one of the foods that I loved to eat. I even cheated my first couple of months because it was so hard to let go, but I can assure you it will get easier.

One of my biggest challenges was actually the emotional side. I felt like everyone was accommodating for me and I hate that. It made me so upset that the people I care about had to change their lives just to accommodate me and my messed up body; I do still feel like this sometimes.

The most important part is to take a really deep breath and just let everything out. Everything will be ok.

I never really felt better after I got diagnosed and I lived with this physical pain for years. I recently found out that I have rheumatoid arthritis and am on another challenging road to recovery. Keep your heads up.

brennabear 12/15/2016

I COMPLETELY AGREE!

I too have Celiac diagnosed via blood and scope (April 2017 will be 7 years for me) and recently diagnosed RA. Your post made me stop and realize how far I've come with Celiac, things do get easier. I am always discovering new foods that I CAN eat and focusing on that rather than what I can't.

Thank You.

JoyceMarilyn 12/15/2016

Thanks so much for the positive share on dealing and getting better. I am only sensitive but since being on a gf diet I have been able to be flare free with my colitis for 2 years! Also I have found out the nightshade veggies (tomatoes, potatoes, peppers and eggplant) are contributors to leaky gut. I can eat potatoes and tomatoes in limited amounts but no peelings!

BrightSide987 12/19/2016

Such a major life change causes grief and grieving. Depression and anger are stages in that process. With chronic illnesses, the grieving starts over and over again. It is a lifelong process.

CaptAmerica 12/28/2016

I must say I agree with you BrightSide987.
CaptAmerica

nickiraeleen 12/29/2016

I think for a lot of new people ( and ones not so new) it is hard to judge how you really should react. I know that when I first got diagnosed I heard a lot of "and.......ok?" and "are you sure that's even a real thing". I took it to heart and dismissed the disease, witch I think in the long run made transitioning worse. It is ok to be upset and to not be "OK", sometimes we just need someone to remind us that.

BrightSide987 01/08/2017

I still get those ... even from medicals who think "a little bit can't hurt". It does get wearying at times to have to explain the same things over and over. We should get paid for all the education that we are providing. LOL

yazzy23 02/14/2017

I'm new to this group. I just got diagnosed via scope with celiac disease a few days ago.

Also, I went to the rheumatologist and seems I might have RA because of a positive CCP and mild joint pain.

Is there a correlation between celiac disease and RA?

I'm such a bread lover. LOL. it is depressing not to be able to eat what I used to be able to. Now I find myself consumed with those thoughts all day long.

With all of this new info, I feel somewhat hopeless since I'm reading that some people have followed a strict gf diet and still have symptoms due to leaky gut? Has that happened to anyone here?

nanny1611 02/16/2017

Welcome to the group, yazzy23. It is normal to be overwhelmed when beginning a GF lifestyle, and bread is the food most missed. Not sure if there's a correlation between CD and RA, but it wouldn't surprise me. I have lupus and polymyositis, and my doctor told me that "Gluten is like a poison to anyone with an autoimmune disease." In addition to gluten, I think that GE/GMO foods and pesticides like glyphosate all add to the autoimmune problems and nutrient deficiencies making us sick. Best wishes to you.

nickiraeleen 02/17/2017

it is however very common for autoimmune disorders to move in pairs. I just happened to get diagnosed with RA much later, but that doesn't mean the disorder wasn't there the whole time. I am not too sensitive when it comes to cross-contamination ( even though the less the better), but I totality understand the bread part. When my co-workers eat bagels I just stalk them and watch them eat. We all laugh about it, but I did a lot of crying about cakes and bagels.

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